Is revolade working and what are poss... - ITP Support Assoc...

ITP Support Association

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Is revolade working and what are possible side effects

Avantidave1988
Avantidave1988

Looking at my platelet count number my gp has advised to put me on revolade..I am facing insomnia due to steroid treatment I hope revolade shouldn't cause at least insomnia symptom. .

16 Replies

Yeah, I was always up early on steroids!

I have had Revolade it worked to start with but I gradually required a higher dose and additionally... steroids!

No side effects what so ever for me.

Good luck, hope it works for you.

What the dosage of steroids right now for you

I am actually off of all drugs!

I had my spleen removed. It's not perfect, but I have ok counts and no more meds.

My problem was that all medicine was gradually overcome by my immune system, which is incredibly fierce, I am almost never sick, not even a bad cold. Side effect is ITP. Typical!

I had a count of 2 when I was put on steroids, it briefly went up to about 20 but after 6 weeks of steroids I was down to 7. My doctor put me on 50mg of Eltrombopag and within in a couple of weeks my count was 130. It been down as low as 70 and up to 140 but after almost 2 1/2 years it's mostly in the 80 / 90 range. I don't have any side effects and I lead a normal active life. If I was not taking a tablet each night I would probably forget I had ITP.

ITP appears to be a changing condition that has different effects on different people. For now the Eltrombopag is working for me, long may it continue and hopefully there will be no long term side effects.

AWSAR
AWSAR in reply to LifeafterITP

Still u r taking eltrombopag ? since how long u taking this drug>. in my case i had platelets of 2 count . used steroids and immunosuppressive drug too. and then eltrombopag for 3 weeks but no effects on counts. so i quit all. no active bleeding just bruises sometimes. but my stool color is dark. only problem i have

LifeafterITP
LifeafterITP in reply to AWSAR

Eltrombopag / Revolade I have been on this almost 2 1/2 years. It will not work for everyone but so far its working for me and keeping my platelets at a safe level.

AWSAR
AWSAR in reply to LifeafterITP

its expensive drug in my country and i had to purchased it . no insurance or medical insurance is providing this drug. So i stopped this as 17 pills of 50 mg did not work for me .

It cost round 30 pounds for single pill

LifeafterITP
LifeafterITP in reply to AWSAR

Yes it is expensive in the UK also, fortunately for me our Health Service pays for it. Within 14 days of taking it my count was up to 130. If you did not respond to it after 17 days then it looks like its not the correct drug for you.

AWSAR
AWSAR in reply to LifeafterITP

ya thats y i stopped it . now just hoping for the best ,. just bruises sometime. and stool color is change lik stool liquid is dark. stool itself is not bloody .

i will have a stool test check today

lets see

Avantidave1988
Avantidave1988 in reply to AWSAR

Just give a try on homoepathy medicine ..also maintain good diet which include folic acid..May be you can try herbal remedies..

AWSAR
AWSAR in reply to Avantidave1988

i will for sure/ . thanks for advice .?

have u tried any herbal remedies

Avantidave1988
Avantidave1988 in reply to AWSAR

I took homopathy medicines for sometime results are so far good.also i have a aleo Vera juice ; giloy amla juice; folic acid ..Deficiency of b12 also reduces platelets to some extend ,so you can have B12 rich food ..I am vegetarian so B12 deficiency is normal for me, so I take B12 tablets. .Also have green leafy vegetables. Kiwis and dragan fruit

AWSAR
AWSAR in reply to Avantidave1988

Thats sound good. I will visit homeopathic Dr soon. I visited before one Dr he said highly potency medicine did effect u so what herbal will do. :P so now i will visit another Dr .

I have been on Revolade / Eltrombopag for over a year now. No side effects and although my platelet count is up and down as they try to find a dose to keep my count on an even keel.

Good luck x

What is the mg u take

Hi..

I'm on 50mg per day just now. But it's been adjusted depending on what my count is.

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