Chronic ITP: Hi everyone, Viju... - ITP Support Assoc...

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Chronic ITP

Viju1983 profile image
5 Replies

Hi everyone,

Viju, recently diagnosed for ITP. past two 40 days hv tried with prednisolone and Azathioprine no response I have purpura all on my back, count 10k. My Doc has put me on Tranexamic acid 500mg thrice daily. Presently no bleeding but can sense blood running through bones. Can someone suggest other treatment options

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Viju1983
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Suntied profile image
Suntied

Several different things didn't work for me but have worked for others. Alot of trial error. Predizone then IVG next went to rituxan because those didnt work. Rituxan works for 60 percent of people I was told by my dr didn't work for me. NPLATE is what I been on and it works keeps my platelets in a good place. The more I get the shot the linger it lasts in my body. I have had ITP for 11 months. I get a nosebleed and bruising if my numbers get 12000 or lower. Nsaids is what I think caused this because of arthritis I was taking high doses. So don't take them now but still have ITP.

Viju1983 profile image
Viju1983 in reply toSuntied

My issue started when I got treated for Dengue despite negative test I was on antibiotics nearly for 15 days that got body transformed to Autoimmune state.

AWSAR profile image
AWSAR

Try some medicine ask ur Dr. But if no medicine works. and no bleeding symptoms . then quite medicine and live happily.

Just have to be careful

bee798 profile image
bee798

Dexamethasone pulse method is sometimes used and had used for me to see if it will reset my blood system. Also methylprednisolone is used and as well as solymedril is used variously. Rituximab been good in terms of resetting itp. Hospital do not want to use it til they use previously mentioned drugs. Also if all fail they will try chemotherapy and eltrombopag and nplate eventually. I have gone thru all those method and finally something worked we believe it was eltrombopag but even science couldn't tell which one to be exact.

bee798 profile image
bee798 in reply tobee798

You may contact me at cariboomobilesteam@gmail.com - I can explain more.

Brian

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