Dave, new here!

[Howada]

Hello all, my name is Dave and I was diagnosed 45 days ago.

[Lin6]

Hi Dave what treatment are you on and what is your platelet count.

Lin

[Howada in reply to Lin6]

Hi Lin, I have two rounds of IVIG and been on 100mg of prednisone for about 45 days. So far the first time they tried to tapper the prednisone my platelets dropped back down to 24k. After the IVIG they went all the way to 217k, just won't say there.

[Lin6 in reply to Howada]

Where do you live?

Iv only had to use high doses of prednisone my platelets have gone up and down this past year but have leveled out at 128 at mo. Mine were 7 when it started, so hang in there pray you will do the same

Lin

[Howada in reply to Lin6]

I live near Cincinnati, Ohio. How much and how long did you stay on the prednisone?

[Lin6 in reply to Howada]

I live in the UK,

I was on meds for 6 months, it seem to work for me from all the posts iv read on here I am one of the lucky ones so far,

What symptoms did you have?

[Lin6 in reply to Lin6]

Sorry didn't add was on 80mg a day then after a month they started to ween me off them

[Howada in reply to Lin6]

About 6 mo ago I had routine blood work done and my number was about 100k and doc said don't worry about it. Six mo later I got bruises all over and ended up in the emergency room.

[Howada in reply to Howada]

Glad to hear you are doing good!

[Lin6 in reply to Howada]

Thank you

[Lynwoodley]

Hi Dave hope you are ok

[Lynwoodley]

My platelets are going up but very slowly 1st week 33 to 44 next week 46 to 47 in the last 2 weeks it has gone up from 47 to 52. I don't know why it is but I have stopped drinking and changed my diet totally am taking vitamins and papaya extract whether this is helping I doing know but at least they are going up weekly other than the bruises and tiredness I am fine. Does anybody know at what number the bruises may I stop getting so easily

[Morgan in reply to Lynwoodley]

Hi there is no pattern to bruises, I have been down to 0 with none but will get the odd bruise at 50.

[Lin6 in reply to Lynwoodley]

Once I got to a count of 50 I didn't bruise as easily any more

[NickyD]

Hi Dave I had seven different treatments over a number of years before they found one that worked for me. My lowest count was 0 and my highest was over 1,000. It could range from 3 on a Monday to 965 on the Friday in the same week. I never could accept the roller coaster nature on the condition and i wish you all the best for the future. This site saved my sanity and if we can give you support we are here for you. Take care. NickyD