LGL leukemia and itp: hello, I have LGL... - ITP Support Assoc...

ITP Support Association

4,135 members2,109 posts

LGL leukemia and itp

kale7 profile image
2 Replies

hello, I have LGL leukemia which is causing my b cells to attack my platelets.My count goes from 15 to 40 .on eltrompobag but quite erratic.Any one else the same ?

Written by
kale7 profile image
kale7
To view profiles and participate in discussions please or .
2 Replies
ellaco profile image
ellaco

I am on the same medication for my ITP, and cannot get my platelet count above 10. I am in my second month on the highest dose and still nothing .

kale7 profile image
kale7 in reply toellaco

My count goes up and down I had platelet transfusion which took my count from 5 to 60. Been on eletrompobag almost a year and my count doesn't go over 50 have been 13 at times.Im trying papaya oranic tea its made from papaya leaves and my count has gone from 23 to 43. Have heard good reports about it boosting platelets .Goodluck

Not what you're looking for?

You may also like...

Itp & Leukemia

Have been reading that ITP can lead to Leukemia...Yes, No, any thoughts? I hope not as I'm...

Fitness and ITP

Hi all, Just wondering if anyone has noticed any relation to their platelet levels and fitness?...
Ironspur14 profile image

ITP and Alcohol?

Before I was diagnosed, I went out and bought a bunch of seasonal pumpkin beers to try. I haven't...
Visua1ingo profile image

Diet and ITP

I seem to experience long term remission as a result of diet effects. I was in a position to get...
RobertSp profile image

Cigarettes and ITP

I was a smoker... stopped on 6 July this year... just wondering if this could be causing my...
Pollyangel profile image

Moderation team

AnthonyHeard profile image
AnthonyHeardAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.