LGL leukemia and itp: hello, I have LGL... - ITP Support Assoc...

ITP Support Association

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LGL leukemia and itp

kale7 profile image
2 Replies

hello, I have LGL leukemia which is causing my b cells to attack my platelets.My count goes from 15 to 40 .on eltrompobag but quite erratic.Any one else the same ?

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kale7 profile image
kale7
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ellaco profile image
ellaco

I am on the same medication for my ITP, and cannot get my platelet count above 10. I am in my second month on the highest dose and still nothing .

kale7 profile image
kale7 in reply to ellaco

My count goes up and down I had platelet transfusion which took my count from 5 to 60. Been on eletrompobag almost a year and my count doesn't go over 50 have been 13 at times.Im trying papaya oranic tea its made from papaya leaves and my count has gone from 23 to 43. Have heard good reports about it boosting platelets .Goodluck

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