My daughter was diagnosed with ITP in August last year, when she was 3. Her platelets were nearly always in single figures until April when they went up to 41, but when we had her tested again last week they had dropped to 24. The haemotologist said not to be too disheartened, it was positive she had remained in double figures but I have noticed more petichae over the past couple of days so I can't help thinking her platelet count hasn't gone up.
How do other parents manage with children who have ITP, and what have been your experiences when it lasted more than 6 months?
I'm completely grateful that she doens't have a more serious condition and that she goes to a great nursery where the staff have been so supportive and they have an action plan for her. I find that one hand it's all I think about and on the other hand I can't be bothered to talk about it because we're just playing a waiting game, constantly hoping she'll get better.
This has ended up a bit more rambling than I intended!