Problems after Intubation and ICU

My wife 2 months ago was intubated in the emergency room and was Life Flight to a bigger Hospital where she was diagnosed and treated for Micro Plasma Bilateral Pneumonia. After being intubated for two weeks she has had nothing but problems since then.. Being healthy as a ox before the illness. Now 2 months after the ICU and intubation, she now struggles with her voice box paralyzed open on the right side. So her voice is very raspy and often aspiration issues that occur with only liquids. Does this happen? As she is a very vocal person and the loss of her voice has left her devastated. Not only has the intubation caused voice issues but also has had rapped hair loss which is also very devastating to her. She also feels so depressed and anxious all the time as this has never happened before as she has always been full of joy and life. Sense the intubation also she has had issues with keeping food down. Every time we go see the Dr or go in the ER we are told that nothing is wrong and her Micro Plasma that she had, plus the intubation has played a toll on her body. How long does this take to heal? She can get up and clean the house or walk around the block and then feel wore out as if she had worked a 40 hour week. Please as I am searching for answers! Is any of this normal after being intubated and a long Hospital stay?

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  • Hi. Has your wife had a swalllowing study done? I too had a completely paralyzed vocal cord. I was gradually allowed to eat puréed food and worked up to soft foods and then regular food over a period of about 6-8 weeks ; the 8 weeks before I had a feeding tube and was only receiving liquids nourishment. I had to drink thickened liquids until I had another swallowed study done and it showed that no liquids were going down my trachea into my lungs. You can develop aspiration pneumonia from that. Your wife needs to rest a lot! She is pushing herself too hard. There is some formula like for everyday you are in the hospital/rehab it will take 5-7 days to recover. So if she was in the hospital 10 days it will take her 50-70 days to get back to her regular self. I developed other problems and don't think I will ever be like I was before. I too lost my hair. It fell out over a period of about 12 weeks. It is just recently looking thicker again. My skin sloughed off and I had/have ridges in my finger and toe nails that are still growing out. I think the high doses of antibiotic cause that. It would have been nice if someone had told me these things would happen. Her illness was a lot for her body and mind to deal with. I am still dealing with it. I am in the USA. If she would want to talk to someone I would be willing to, email or text or whatever. I always have to remind myself how far I have come since last June when I came home!

  • Thank you for your reply and so sorry for your medical circumstances also happy that your recovery is looking up. Yes my wife had a swallow study done. We had just found out that her voice box is paralyzed open and indefinitely. Her ENT said that there is a procedure that can be done to help her. Even now 6 months after discharge, when something is wrong with her I sometimes don't know what ever is wrong could be apart of her healing process, or something different. Thankyou for your time as I hope you continue to heal. Can't believe healing takes so long..

  • My wife wants to know what end up happening with your voice box. As her email contact information.

    hollowell2516@gmail.com

  • I can't remember exact dates but it was about 3 months after I went into the hospital but was home, the ENT did an injection directly into my vocal cord. Some call it Botox but it wasn't, just something similar. You are awake for it they do it in the office. The numbing process was very unpleasant. And it was a little uncomfortable when the medication wore off. I only have one vocal cord paralyzed. It helped a little bit. Went back 3 months later and they attempted another injection but my vocal cord had scarred and the Doctor stopped. Went back in December for a check up and my vocal cord had regained some movement so it is at about 50%. I go back in June to check again. There is a surgery where they place an implant into the vocal cord. Have not made a decision about that yet. They will not consider surgery until it has been about a year since the damage. My voice is almost normal, I just don't have any volume. People I don't know have trouble hearing me, in a busy crowded room I have trouble being heard. My main concern is calling for help if I am a couple of rooms away.

    As far as complete healing goes. Everyone is different. I have multiple other problems brought to the forefront since my illness. Mostly heart issues and damage to my lungs from the pneumonia and ARDS. I too deal with anxiety and depression. Starting to see a therapist to see if that helps. I am also going to train my own service dog to help me with mobility, anxiety and alerting if I need help. I had to stop work and now feel that I don't have a purpose. Hope this helps. It helps me to share my experiences with someone, that gives me a purpose. Have a great day give your wife a big hug and if she wants to message or email me directly I am very willing to do so.

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