Dont understand if this is normal with coma with ... - ICUsteps

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Dont understand if this is normal with coma with covid patients

Paranormalmore1 profile image
9 Replies

Hi my wife has been in icu in a coma for 5 weeks she has now woken up and don't wont to talk to me are see me I don't understand this and its heartbreaking she dose not act like this with her mother I don't understand and don't know if this is normal with patients

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Paranormalmore1 profile image
Paranormalmore1
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9 Replies
Sepsur profile image
Sepsur

Hi @Paranormalmore1

Have a look at the delirium guide on this link - it may explain why your wife is frosty towards you.

During my ICU delirium I believed my wife had been plotting to kill me for a life time

cc-sn.org/information

Paranormalmore1 profile image
Paranormalmore1 in reply to Sepsur

Wow how long did it take for you to get better sorry for asking but love my wife so much

Sepsur profile image
Sepsur in reply to Paranormalmore1

I think I had delirium for about 11 days

Paranormalmore1 profile image
Paranormalmore1 in reply to Sepsur

Thank u fingers crossed 🤞it will pass

Gooddaysunshine profile image
Gooddaysunshine

That delirium guide above is very useful. I would add lack of sleep to the causes. After my coma I was delirious and was evasive towards my wife, because she would not come and take me home from hospital, and I thought she was in cahoots with the medical staff to keep me there against my will.Obviously I was in no fit state to go home, and everyone was watching out for my best interests, but post-coma patients are experiencing a very different reality.

Copse77 profile image
Copse77

I am so sorry to hear your wife is suffering and that you are too with her reaction to you. I remember my brother acting like a stranger when he first woke up and it was so hard for me as I had been to see him every day while he was in critical care and then when he stepped down to intensive care. All the time he was unconscious. It’s not like in the films when someone wakes up and is back to normal. No one tells you how it really is. I am sure the deleriumWill

Pass but until then I hope your wife continues to improve.

PeterJu profile image
PeterJu

hi.

This is incredibly difficult for you!

I was in ICU with covid last April and on a vent, followed by a normal ward. I really didn't want to see my wife either. Partly it was because I knew her seeing me, with tubes everywhere, would upset her and I didn't want that to happen. Also I didn't really want contact with the outside world as i thought it would upset me. I felt that when i was in my small ward bubble I was just focused on getting better. In hindsight, I was also in a fog of drugs, coupled with delirium.

Don't take it personally! Reading about delirium is useful (not saying your wife has this btw). also I think you might find ICU steps advice on what to expect going forward useful. see

icusteps.org/information/gu...

best wishes, Pete

Hi, it is possible they have ICU delerium, but also it could be they are exhausted. My own experience was that while in ICU I was not particularly receptive to calls from my relatives. I was very tired due to lack of sleep. I did have delerium in ICU but that was mainly when I was sedated and on a ventilator.

CLM68 profile image
CLM68

She has been through a really scary experience and probably doesn't even truly realise what has happened yet...being told you have been in a coma for a period of time is quite tough to hear. It is great that she is able to connect with someone and don't be surprised that it is her Mum, I wanted my Mum first. This a time when you now need to take things slowly. Get her used to seeing you again...I couldn't remember so many things when I came round, my address, phone number, who I worked for, names of my friends and that was frightening. I was worried about how my husband would regard me...did he now see me as "broken" in some way!

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