Waking from coma: fluctuations : Is it normal for... - ICUsteps

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Waking from coma: fluctuations

Marcita profile image
17 Replies

Is it normal for the patient to show a different behavior everyday after coming out of a long induced coma? 3 days ago mom could nod her head, 2 days ago she could say yes and no. Yesterday she hasn't made any communication except by tracking people with her eyes.

She was seen by the same doctor for 4 days and yesterday it was another doctor.

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Marcita profile image
Marcita
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17 Replies
Sepsur profile image
Sepsur

You may find that your Mum is suffering a little ICUdelirium. Apparently I behaved very much like you describe your Mom, very suspicious of everyone & still as anything - just tracking people with my eyes. Trachy meant I couldn’t communicate anyway.

Later, I discovered I was experiencing hypoactive delirium as opposed to hyperactive - which is easier to spot. Mine was temporary - I published a post yesterday which outlined a few tiny differences in the recovery from Covid.

The staff are having to use more & different paralysing agents to help synch the patients on ventilators whilst proning - because they are using proning more frequently than normal.

The sedation will probably increase the chance your loved one will experience delirium - this is normally short lived and passes within a few days.

This gives a great explanation

icusteps.org/assets/files/b...

Marcita profile image
Marcita in reply to Sepsur

When did you start swallowing water and food? Mom has a good appetite so we think food would eventually make her happier lol. She started to show signs of conciousness after she was hydrated.

Sepsur profile image
Sepsur in reply to Marcita

I WAS SO THIRSTY!! - first drink day 70 & first food day 75.( by mouth).

Marcita profile image
Marcita in reply to Sepsur

She's breathing on her own and no tracheotomy so I guess she should be able to drink something anytime soon I guess 🙂

Videodragons profile image
Videodragons

Yes, it is normal. It took me a week just to wake up from my coma.

It's good that you're keeping a record of how her state changes from day to day – that will help the doctors assess her progress.

Marcita profile image
Marcita in reply to Videodragons

It took her almost 20 days to show signs of conciousness.

Videodragons profile image
Videodragons in reply to Marcita

I was in my coma for 7 weeks, 4 years ago.

Marcita profile image
Marcita in reply to Videodragons

She was in a induced coma for 16 days, they turned off the sedation and another 18 days to show signs of conciousness. Before she just had her eyes open without any communication.

Videodragons profile image
Videodragons in reply to Marcita

Sorry, I don't know what to say. They were very worried about me – so much so that they sent me for a brain scan. Do talk to her once in a while. I suspect it helped me.

Sepsur profile image
Sepsur in reply to Marcita

Because they are using loads more paralysing agents than normal -so effectively they are being sedated to a greater degree - it is taking loved ones ages to wake up & ages to start communicating.

Natty1234 profile image
Natty1234

Hi Marcia I wwnt from not. Remembering anything to thinking the nurses were actors trying to kill me being watched by secret cameras to being filmed on holly city everyday was a nightmare for me

Marcita profile image
Marcita in reply to Natty1234

Wow! Thank you. Yesterday she was able to speak again.

I was in a induced coma for 59 days a couple of years ago it left me with post traumatic stress my whole personality changed also I still struggle today 😖😖😖😖😖😖they tried bringing me out of sedation 3 times in those 59 days !!!!! Id had a haemorrage in my lung and was basically drowning from the blood in my lungs I have LUPUS

Marcita profile image
Marcita in reply to

I'm so sorry. Hope you get better with the time ⚘

Hugs!

Marcita profile image
Marcita

Hi. She was able to speak again yesterday. Maybe because the first doctor was back.

We just need her wounds to get better and she needs to start moving and eating. Other than that she looks good.

Marcita profile image
Marcita

They let us videocall her. It made me happy but also so sad. She's confused. Her eyes were not fully tracking us. She looked weak and fragile but she nod her head and moved her hands a little...

I hope she improves fast and leave the hospital. I can't deal with my mom like that 😭

Axogirl49 profile image
Axogirl49

What a strong lady! She's light years ahead of where my mom is. Keep the faith!

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