Sepsis recovery after 2 years

[jobo_2016]

Hi, I suffered from sepsis in April 2016 with 20% survival rate, since then my health has been up and down, in the last 6 months I've been in and out of hospital.

I ache all over, tired all the time, can't catch my breath plus my memory /concentration is shocking, all these issues are getting me down, I am only 47 and I just want to get back to normal (what every normal is!!!!).

Can anyone advise me if they have had the same issues and the best way around it.

Thank you

[Sepsur]

Lock your post and you may find people are more forthcoming . I, like you had Sepsis April 16. I eventually came out of hospital in Aug. First year was more problematic, frequent infections etc....I had no immune system. Tried to eat healthily- got a nutrabullet - put in anything that would help my gut get back to normal, took vitamins to fight off infection, took manuka honey as soon as I started coughing or spluttering - unfortunately the expensive stuff is the only one that has any real manuka honey in it. I did/do regular exercise- a rehabilitation gym class at hospital and take my dogs out everyday. Within 2 months of leaving hospital, we were figuring out how to form a support group for expatients & family members. By Dec we opened our doors. I did voluntary work for a couple of hours once a week and slowly increased it. I’m now back working full time in a physically demanding job, which I always did. What I did was everything to take myself out of living in my own head all the time. I had to force myself back into the flow of life. Sepsis is often described as the gift that keeps on giving...at the moment I am losing mobility in my fingers especially my right hand - another thing to get checked!!! I suggest trying to talk to people who have experienced what you have, don’t get discouraged or by other people’s attitude to how you are dealing with the legacies of ICU - family had a different ( albeit awful) experience- but yours isn’t ever over.

[jobo_2016 in reply to Sepsur]

Thank you for your much appreciated comments. I am not sure how to lock my posts?

Kind regards

[Sepsur in reply to jobo_2016]

There is a symbol in the corner - but when writing initial post, check cursor along bottom - offers lock or unlocked

[Seaniokitkat38]

I have exactly the same symptoms you describe. Hard to explain to someone who hasn’t had it . Anna