Hello, Ive written here before and found a great comfort. Im really struggling at the moment as my mum has Adult respiratory distress syndrome (ARDS), "also called acute respiratory distress syndrome, a type of lung (pulmonary) failure that may result from any disease that causes large amounts of fluid to collect in the lungs. " which i was originally told was a rare type of pneumonia .
She's been in ICU 18 Days now. She now has a new lung infection called pseudomonas and back on sedation and oxygen at 60% so this is what they are currently treating.
She's just been probed (laid on tummy for 16 hours) with no effect and when she was coming up from sedation which i had the luxury to enjoy for 3 days, she was very upset (except the first day where she seemed ok and even smiled when I said they were going to brush her teeth) and seemed to laugh at something I said) the 2nd and 3rd day she was very anxious and frowning and shaking her head and when given her oral rinse "with chlorhexidine" on the sponge her stomach shook and she cried and reminded me of a baby. It really broke my heart as they do this every 2 hours. She can't speak because of the Trache and she can't move her arms or hands because of being sedated so long.
It is starting to feel like she might not get better because so far none of the anti biotics have worked and nothing has changed over all this time except the oxygen she needed went down to 35% but has now crept back up. She can't take Penicillin as it gives her a tummy ache, but I've now told the doctor to maybe try that and he agrees and didn't realise the penicillin allergy wasn't a dramatic one.
Also just been called by the doctor to say one of her lungs has collapsed which apparently is not out of the ordinary and can be fixed.
Im sorry to sound defeatist. I want nothing more than her to recover and get out of there. I love her so much. I am so worried that this will go on for months and months and she will be going through hell and then maybe not even recover.
Any thoughts would be great. Thank you.