Need help with blood test and comments - Hughes Syndrome A...

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Need help with blood test and comments

rosiemay profile image
2 Replies

Hi,

I need help with comments from the rheumy. On a letter she sent me, it says I had a positive blood test for a condition that causes sticky blood and Raynards but that it's probably a false positive. I didn't think that the same antibodies caused the 2 conditions.

Then she gave a slip to have a blood test in 3 months. On the clinical details box it says raynards, sicca and what looks like Sx next to it, then +ve aca. I think +ve means positive and I know sicca is sort of Sjrogrens. So does that mean that she thinks that I have those?

The test is then for ENA Anti cardiolipin and then what looks like AS

I know it's all up in the air and I am guessing that she is doing a good job by doing an ENA to see which antibody is causing the problems.

I guess what I'm saying is that the letter seems to be downplaying what it says on the clinical details.

Any opinions or info would be appreciated.

Regards

Rosiemay

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rosiemay profile image
rosiemay

Hi,

Thanks for the info.

I have livedo reticularis, fibromyalgia, migraines, 2 5 week miscarriages, flashing lights every day, dizziness, pain and fatigue etc

She didn't suggest any medication. I try to take baby aspirin now and again but have stomach reactions with nsaid's.

I just got confused with the clinical details, thinking that was saying what I had.

Thanks

MaryF profile image
MaryFAdministrator in reply to rosiemay

Hi there, and welcome.. and yes to all said above, please get them to thoroughly check out your thyroid... as Professor Hughes himself often talks about the trio of disease which is Hughes, Sjogrens and Thyroid.. lots of us have this and other things on top. I am glad you are in the hands of a well read medic!! Mary F x

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