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Hughes Syndrome APS Forum

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anyone who has anti-phospholipids has problem in forefront feet orthopedic said it might cause arthritis that attacks the joints of the feet

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dalalf
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MaryF profile image
MaryFAdministrator

Yes... and this also: ard.bmj.com/content/63/10/1...

Mary F x

dalalf profile image
dalalf in reply to MaryF

Thanks a lot for answering my question, but I don't have metatarsal fracture that is in the other article what I have is similar. I did Mri Bone scan and Xrays which id not show any problem except inflammation of the forefoot joints, it might be Arthritis I'm confused.

swx3 profile image
swx3

Sort of, I get sore feet, mostly right sided and in the arch, more recently, I feel as thoug a muscle has knotted just at my big toe, I massage the area, and the day after I have a lovely bruise, sometimes just a tiny one, but right now it's thumb sized. Sarahx

dalalf profile image
dalalf in reply to swx3

My problem is it affects the balls of the two feet with inflammation of the joints of the forefeet can't walk more than 10-15 minutes and I feel as if there are stones in my shoes, anyway thanks for your answer

taffydaffy profile image
taffydaffy

I have tendon damage that cause clawed toes in all my toes and my achilles Tendons are very tight due to shrinkage plus Neuropathy in both feet x

dalalf profile image
dalalf in reply to taffydaffy

I have APS and Sjogrens and it seems these autoimmune diseases cause so many problems in our bodies is there any end to it??

Jade profile image
Jade

I have oddly over recent weeks had a burning sensation on top of my right foot. It is quite regular but nothing can be seen and I cannot think of anything that I have done to hurt it.

dalalf profile image
dalalf in reply to Jade

My Orthopedic told me autoimmune diseases can cause Rheumatoid Arthritis that wont show in many of the tests I did, it seems many of us will get something of this sort.

donnabrain profile image
donnabrain

I get heel pain, stops me walking sometimes

dalalf profile image
dalalf in reply to donnabrain

My pain is in the forefeet, stop walking many times. It's good to know that many of us APS have same issues so we can tell our doctors of what's going on to many of us.

k7pbx profile image
k7pbx

I have pain in hands and feet. Having hand surgery soon.

dalalf profile image
dalalf in reply to k7pbx

Take a second opinion as it might be like me Rheumatoid arthritis due to APS and make sure you need it

luisal profile image
luisal

Very educative the question posed and the comments posted. I'd been diagnosed with APS and have suffered pain in the forefeet for the past two years; according to my Immunologist the pain is not related to the Syndrome.What is helping to ease the pain is walking and practicing specific yoga poses. I live in Venezuela where perhaps medical care is not at England's level. Please do let me know your evolution.

dalalf profile image
dalalf in reply to luisal

I live in Lebanon and we have very good doctors I did several MRI for the feet and bone scan and doppler and the last was an Xray for the soles of the feet. I saw an Orthopedic who has come back to lebanon 2 years ago from Mayo clinic and he thinks that APS and Sjogrens as I have both may cause some kind of Arthritis as the joints of the toes are inflamed and can't walk more than 10 minutes he advised me to put medical insoles they are soft and it helped me. I'm seeing another Orthopedic next week and if he tells me I need an operation then I'll go to London UK as my Rheumatologist is in the Lupus center that was created by Dr Hughes and I was lucky enough to see him eight years ago before he retired and he diagnosed me as having APS. Another thing Dr Hughes told which is nice to know is, during a big medical convention attended by 400 Rheumatologists they decided it should be called after him Hughes Syndrome. I'll keep all who answered my questions posted after I see the doctors in London.

luisal profile image
luisal in reply to dalalf

Do please keep us posted on your evolution. It seems to me that I'll have to consult Dr. Hughes sooner or late.

dalalf profile image
dalalf in reply to luisal

Dr Hughes doesn't practice he is all around the word giving lectures but there are other doctors in the Lupus center it is in London Bridge Hospital it's where I go every few months for a checkup.

luisal profile image
luisal

How do I know if Dr. Hughes ever comes to Venezuela? Do you know? If I ever go on consultation to London. what doctor will you recommend to me? My APS is a primary one.

dalalf profile image
dalalf in reply to luisal

Dr Hughes stopped treating patients he only gives lectures, I have been seeing Dr Tench at London lupus center the past five years. this is the website you can get a lot of information and telephone numbers and address hope this will be of some help

luisal profile image
luisal

Oh thanks a lot! Keep posting for all of us and take care

dalalf profile image
dalalf in reply to luisal

I will when I get more information