numbness

[chapman]

since last yr, my right arm goas numb like somone has put a bandage on too tight (middle arm). told docters but none of them have given me a reason why.its not painfull just uncofy. doas anyone else have this??? warfrin yesterday was 2.6. is that good??.thanks stacey.

[bluebutterfly101]

Hi Stacey, yes I have had this for a number of years - can be either arm. Dr said I must be lying on it at night, but the silly thing is it is usually the arm that is uppermost and not the one I am lying on!! Warfarin level depends on what your INR clinic have set your level to be. I think the recommended level for those with Hughes is between 3-4. However, saying that mine swings between 1.1 and 4.7 within a couple of weeks. You need to ask what your level has been set at then that will give you a guideline to work with. Hope you get a more reasonable answer from your drs.

[chapman in reply to bluebutterfly101]

hi butterfly. i got my inr done the other week and it was 2.6. it is such a strange feeling on the senter of my arm but i should be gratefull that it doasnt hurt.pain is the horrid.some gps make you feel as if your making it up or cant keep up with your list of symptoms. thenks stacey.

[overnighthearingloss]

My INR is 2-3. I feel really groggy and tired when it is at the upper end of the range. 2.6 is moving into the bruise zone for me.

[chapman in reply to overnighthearingloss]

hi thanks for coment. think my inr is between 2-5 but i get all my sypmtoms if inr is low or high.and it was set before i was diagnosed . doas that make a diffrence? .stacey

[swx3]

Yip, I've had back ache for months, but the arm numbness came on about a month ago, straight to GP and got a quick round of X-rays, but they have come back clear, I'm waiting on physio (been told 7-11 weeks waiting time) doc reckons its is muscle/tissue damage which is pinching on my nerves and I've just had a workstation assessment at work, and they are going to provide me with an ergonomic chair, and foot rest , and some sort of fancy nancy mouse. It's all on my right side, does not vary, the best way for me to describe it , is like when you get your blood pressure done, and the band gets very tight, and everything feels a little weird...I'm always wobbling my head about to try and ease the pain, it's like a constant creek in my neck/ shoulder, and I sleep for a couple of hours at a time, the pain wakes me up, I cannot lie on my 'sore' arm. Sarahx

[chapman in reply to swx3]

hi sarh. thanks for that.is it funny how gps opinin differ from each other and the waiting time is a joke!! i soppose that becuase my right arm is not sore just uncuffy then i should be been gratefuff just wondered if anyone else has gets it. . get so tired but cant sleep at nite. going to see a another specilist in june.stacey.x

[swx3]

Thanks for that, just had a wee up on that. Have had a hard hard day today, and anything that can keep me more in the loop the better, don't know how much longer I can cope with this! Sarah x

[Charli84]

Hi there. I get this in my left arm. It's tingly and numb and I've been sent for nerve test and all sorts and I've still not got an answer to what it is. I'm the same it doesnt hurt just uncomfortable. Especially when I'm trying to sleep.

I hope you get some answers soon xx

[chapman in reply to Charli84]

hi charlie. sounds about the same but no tigling. my symptoms seem to be all coming out at the moment but when i see specilist i will tell them. hope ur feeling ok.stacey

[Charli84]

I've never felt ad full of symptoms as I do lately. It's horrible.

Xx

[chapman]

hi charlie. its not easy living with pain and symptoms that rule ur live and its made even worce by ppl saying WHOTS THAT!!!!. sorry to hear that ur having a rubbish time. wish there was a support group in yorkshire. i was at gps tday.in the waiting room, think its about time there was info on clots, aps. can u think of stuff? stacey.