WHY DO I HAVE SYMPTOMS LIKE MS IF MY BLOOD TESTS ARE NEGATIVE

[AINS]

I DONT UNDERSTAND I WAS TOLD HUGHS SYNDROME WAS A BLOOD CLOTTING DISORDER SO WHY DO I HAVE ALL OF THIS PAIN AND STRANGE SYMPTOMS IF MY BLOOD TESTS SAY MY ANTI BODIES ARE NOT PRESENT

[Storky]

Im seronegative and I know its confusing! I was told its because the tests are just not sensitive enough and or we just may have a slightly different antibody thats not getting picked up. Then there is the fact that antibodies come and go and it depends when the tests get done, so there could be loads of reasons why. This is why its so important to have your clinical history as well as the blood tests taken into consideration.

[emmaj]

Im exactly the same, sero negative - im waiting for a lumbar puncture to rule MS out, the symptoms are the same, ive had positive test in the past though x

[taffydaffy]

Hi there

I have many friends with M.S and i have been DX with Hughes / Lupus / Sjogrens and many other little things I am floored i am still waiting after many years for remission i have Lesions and plaque on my brain and have had multiple tia's yet my freinds are copeing very well I give up i just live from day to day never look back and always look forward and on top of all my problems my husband / Carer this time last year was struck down with Heart Failure and Kidney failure so i now look after him and i have my own P.A and she cares for us both lol x

[Lesley_D]

You know,` i have just joined this site. and the more I read the more I think - Oh my lord I have had this for years, or that symptom, I am amazed most of this could be due to APS, I have primary APS, with the glyco b2 protein ( I think that's it) diagnosed only last month - in the 80's I had multiple miscarriages, undiagnosed, and in 94 sufered MS symptoms, so much so I was wheelchair bound for 7 years, with no real diagnosis! other than I would never walk again, 17 years on, I can walk, not run, but no longer have the ms symptoms, I am wondering now, if it was the APS....... an answer I am guessing will never be answered

But for you, I wish you the very best in good health

Lesley

[whynotme in reply to Lesley_D]

Hi Lesley, same kind of history here as you at about the same years. I too have been given the diagnosis of MS but don't feel in my gut that that is what I have. Are you on anticoagulant therapy now and is that the reason you are now better? I am considering a trip to London to have this properly addressed . Appreciate your input..Dar