INR: Hi everyone. Im on clexane... - Hughes Syndrome A...

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INR

margaretjo profile image
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Hi everyone. Im on clexane injections as my inr could not be stabilised on warfrin, my question is should i still be getting my inr checked as i still get symptoms especially fatigue and brain fog. Happy new year to everyone

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margaretjo profile image
margaretjo
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Jade profile image
Jade

In a nutshell no. INR is only relevant to those taking warfarin. Clexane works in an entirely different way to warfarin and the dosage is weight based.

If you are still getting symptoms it is something you should discuss with your Dr as you may need a higher dose.

I personally have not ever been symptom free on either. But I am improved.

jessielou profile image
jessielou

Hi hon,

As Jade says, Inr is only necessary on warfarin, it may be a dosage issue with clexane, maybe ask about aspirin with clexane to see if that would help other symptoms!

Certainly worth getting checked out, it's difficult to know what's flaring when you have multiple diagnosees as you do.

I hope your docs can help hon.

Take care gentle hugs love Sheena xxxx :-) :-) :-)

Salty profile image
Salty

You may need to add an anti platelet agent (eg aspirin) or change your dosing of clexane. I started with once daily dosing of lovenox with incomplete relief of my symptoms despite also taking plavix (aspirin did nothing for me). My hematologist had me switch to twice daily lovenox stating that once daily treatment has a high failure rate especially in conditions like APS or clotting due to malignancy. This made a huge difference for me.

loulou123 profile image
loulou123

I AM TO ON INJECTIIONS EVERYDAY I GOT A CLOT WHILE I WAS ON CLEXANE AND ANOTHER WHILE I WAS ON WARFRIN I DONT NOW HOW EVER GET MY INR CHECKED COS IT DOESNT REGISTER ON THE INJECTIONS I DO HAVE TO GO TO THE HEMOTOLIGIST EVERY THREE WEEKS THOUGH

margaretjo profile image
margaretjo

Thank you all for your answers. It really helps to have this forum because instead of sitting here worrying I can ask advise from the people who know APLS best US xx

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