Neurologist

[sharonap]

Went GP last week as have had couple of weird neurological problems. Put in a referal (dont think thats right spelling thats the third word tried to spell and cannot) to neurologist and said might take couple months...anything like rheumy that took 6 months. Recieved appointment today 10th Jan 2013. Now just got to hope they know something about Sneddons syndrome.

[Suzypawz]

I hope you get the answers you are looking for, quite fast with appointments

Let us know how it goes x

[sharonap]

Hi, Sneddons is a neurovascular disorder alot of the symptoms are very similar to APS so sometimes hard to tell which is responsible for what. Usually you have an autoimmune disease as well as having Sneddons (MS,APS, LUPUS etc).

Its rare 4 per million there are a few on here that have it.

[MaryF Administrator]

Please keep us all in the loop, and feed back what they say of interest and I am pleased you are not have a six month wait. Rheumatology referrals are often very slow! Mary F x

[sharonap]

main symptoms are livedo reticularis, headache,dizziness,progressive cognitive problems,involuntary muscle spasms,severe pain in face and eyes,severe tias, strokes, essential tremors,heart problems,depression and memory problems.

The problems seem to be with the blood vessels not the blood compared to APS which is the blood.

[sharonap in reply to sharonap]

sorry ment to say hope this is usefull also sorry about my spelling my brian is not working today.

sharon xx

[kmac42]

Hi there...here is a link with some great info on Sneddons syndrome... sneddonsyndrome.org/

I have the livedo reticularis, neurological problems, tested positive for Antiphospholipid antibodies....no one's heard of this syndrome....so what a battle!