Need a dr.: I have APS-had pulmonary... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Need a dr.

designer16 profile image
1 Reply

I have APS-had pulmonary embolism, 5 miscarriages, bowel obstruction. Now I have MS like symptoms. Dr are confused because there are no Brian lesions, spine lesions are anterior & even though the symptoms of weakness in legs & r arm has got worse the lesion is unchanged. The neurologist said I have a auto immune disease but does not believe in Hughes syndrome or has no experience with it. From what I have read I think I have Hughes.i have tried to find a dr w/o much luck. I am in California,USA. Any suggestions?

Written by
designer16 profile image
designer16
To view profiles and participate in discussions please or .
1 Reply
Skyllark profile image
Skyllark

um - not sure sure about the state you live in - but Doruk Erkan, MD in NY is the Chairman for APS Action apsaction.org/leadershipmem... - this is a web site showing the lead reasearchers world wide

Not what you're looking for?

You may also like...

Dr khamashta gone?

Does anyone know where he has gone? My appointment at the lupus centre at Guys has just been...
louise78 profile image

Dr's give me no hope. I need help!

I'm not even sure if I am in the right group? I have multiple diagnosed health problems including,...
TaraRae profile image

A great reply regarding a Thyroid patient from Dr Martin Scurr

Many of us with Hughes Syndrome/APS have Thyroid problems, many of us are told we do not, due to...
MaryF profile image
Administrator

Supplements

Hi everyone I am new to this forum.I have not been yet diagnosed but there is suspicion with aps.My...
L0sted profile image

I tested positive for lupus anticoagulant, but retest a few months later is negative. I have MS like sx - not dx with anything at the time

Other than possible MS - followed by neuro for the past three years - follow up MRI show no new...
cmars profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.