Well I ended up with flu and nearly no voice in time for going down to London to see Prof Hughes. With train delays etc we spent about 7 hours in all travelling. Starting at 9 am and back at 11.45pm. Boy was I tired and completely useless the next day.
As we all know he is a lovely doc. Very thorough. We discussed my tests of 2004 at St Thomas. I was under the impression I tested negative and have never been retested since. BUT drum roll, I was misinformed by a junior, I am positive Anti ro. Yeah.
It feels so odd knowing I actual do have something wrong. Before I felt like a fraud and kept telling myself perhaps you are imagining all this. Now when things hurt I think, no it really is real. After all this time I am vindicated.
So we are going to try plaquenil again. I tried it in 2007 and I felt it depressed me and gave e nightmares he does not want that so thinks just 2 pills per week may be OK. I need to ring him in 3 months to say how it is going and going back in 6 months.
My next hurdle s getting the new GP to agree to it. My son has been trying since he saw the prof 6 weeks ago to get it but the GP is putting obstacles in his way and we share the same GP practice.
From doctors to professors
At my recent visit to see the Rheumatologist Dr Green at York DH.
