I had a great GP who learnt all about my problems. Acted promptly to referal reauest from Clnsultants & acted immediately to prescription chsnges etc. Also his Surgery Manager & her team are fantastic. However due to tragic circumztances his LOCUM took over.
But as the practice staff have been so good & I have been in various Flares followed quite rapidly bh another one I have not found a new GP.
Now it is essential. This X Locum ignores referal request from Consultants (4 letters in 1 instance so far), ignores instructions for monthly Vitamin injections. My Vit D levil was 10> since 2008-Nov 2011. I have had only 1 injection & my vit d levil as of Oct 2012 is still 24<.
With the new benefit changes I despertely need to find a supportive GP.
I am currently in Flare, suicidal & have Discoid Lupus breakout all over my arms & legs.
This letter & phone call that you are instructed to make (which is the first verbal interview), is getting close to being the straw that breaks the camels back.
Sorry to be a whimp again. But I had to go back to London on the 30th for an urgent scan. THEN BACK AGAIN ON 31 for an Ultrasound. Having been at the Lupus Centre on the 16th.
My Follow-Up Appt for 3 months was changed by Prof'D'Cruz until April 24th. I have spoken with the consultant I saw who only works 1 tuesday a month & she said she asked to have the appt put back ti the original 3 months....but no joy. Went to the Unit while in London & apart from obtaining blood results no one could see me. I have bleeding, pussy open discoid sores all over me & my nightdress was badly stained from the journey up. I did manage to get some additional bloods taken that were previously highlighted in April this year as being outside normal limits instigated by one of the nurses as the Consultant I saw on the 16th Oct had not requested them.
POSITIVE NOTE : SINCE OCTOBER 16th when there were no leaflett's on Hughes Syndrome or Lupus. THERE ARE NOW LEAFLETS AGAIN ON LUPUS.