I know this is for Hughes syndrome bu... - Hughes Syndrome -...

Hughes Syndrome - APS Support

9,716 members9,874 posts

I know this is for Hughes syndrome but I was told you can help me I have polycystic ovaries and factor v Leiden can I still get pregnant.


Hi I have recently been diagnosed with polycystic ovaries and Factor V Leiden and i have been trying to get pregnant with my partner for two years now and still no luck and im really worried incase im unable to have children my partner sister just found out today she pregnant when she wasn't even trying which kind of got me upset because me and my partner really want children can people like me still have children and how long did it take you to get pregnant.

10 Replies

Hi, I will endeavour to provide some information, firstly this paper: ncbi.nlm.nih.gov/pubmed/100... and I do urge you to get some help from your GP/Consultant. Secondly when you see your GP, make sure they test your hormones as these are often disrupted with a PCOS, also as it often goes hand in hand, make sure your Thyroid is looked at properly as this often sits with PCOS, a thyroid condition, and if that is out of kilter it will not help you conceive, also check your iron, B12 and vitamin D levels. If you have any of these symptoms in addition to your current diagnosis: hughes-syndrome.org/about-h...

The by all means request these tests off your GP: hughes-syndrome.org/about-h...

If you are seeing your GP they will probably be getting you to take folic acid if you are trying to conceive. Please be aware that his forum is for those with Hughes Syndrome/APS. If you get a diagnosis then do come back and make use of our forum, the above advice is a pathway to getting more support with your plans to start a family. I wish you all the best. MaryF

kristina281192 in reply to MaryF

Hi before I was diagnosed with polycystic ovaries the doctor were constantly monitoring my hormones and they are fine since the last time they're checked they said my thyroid glands are fine and I'm not anemic but I'm just scared I cant have children I did post this on the pregnancy forum on this website but they said that you ladies might be able to help me more.

MaryFAdministrator in reply to kristina281192

Hi, unless you have Hughes Syndrome/APS, and if you do, please come back to me/us if you have done those tests, however if not, this is the forum you need, you can leave our community by unticking the box up on the right, and then joining this one.... healthunlocked.com/verity-pcos

If it turns out at a later date that you might have Hughes Syndrome/APS, Sticky Blood - Antiphopholipid Syndrome, please come back to us.


I am sorry for ur difficulties. I do not have either condition but as far as I know, the key for u would be to keep ur pcos under control. Are u on any meds for that like metformin etc? What is ur BMI? If thats high u may want to work on trying to get it towards normal range.

I have heard that some women go on heparin pre pregnancy/at ovulation to increase chanced of good fertilisation. Have u explored these options with ur specialist?

Bw xxx

Well my weight is 90.2 and doctors class that as obese but its mainly my stomach I finding hard to lose weight on and the doctors said to try and lose weight first then they will put me on the medication but I don't understand they people bigger then me getting pregnant and I'm six days late this month as well but I went months last year with out a period and I thought I was pregnant so that when I found out i have polycystic ovaries so I don't know whether I would be pregnant or not.

I know of a lady who had infertility for 11 years and she was more heavy than you. She did a weight loss programme with Shivananda Yoga (Hatha Yoga) and as soon as her weight came down, she was pregnant! She is a mum now. Dont loose hope. U dont know what other ladies who are heavier than u have done for help so focus on what u can do. U will surely get there. PCOS is considered a treatable cause of infertility. Good luck xxx

Thank you that's mean alot.

I have PCOS and Hughes syndrome and used the verity boards for a lot of help and support. There are ladies on the verity boards that have both PCOS and factor 5 and have gone on to have children. The most important thing is to lose weight as depending on your hospital you will need a BMI of 25 - 30 so if you are over 30 you won't be eligible according to NHS guidelines. With PCOS it is important to limit carbs when trying to lose weight as we often have insulin resistance. There are very few ladies that do not get pregnant with treatment for PCOS. I found reflexology very helpful in regulating my periods and then I used my temperature to see when I was ovulating which worked extremely well. You can see how to do this at fertility friend.com. Your conditions are very treatable so don't give up or lose heart. It took us 4 years to have our daughter and most of my friends had children in this time which was hard and some even had two before I had one but we got there in the end. Wishing you all the best xx

Yes, you can still get pregnant...and often times, after a successful pregnancy, the polycystitis can be less of a problem. One thing that many people do when "trying" to get pregnant...is have intercourse too often. This lowers the sperm count and lessens the chance of pregnancy. Starting from the 1st day of menses, count 8 days prior to having sex. Then do so every other day to allow sperm to replenish, until day 20. I bet you will be pregnant within 3 months.

Thank you could do with support.

You may also like...