Do my symptoms sound like it could be... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Do my symptoms sound like it could be APLS? Just sent bloodwork in. Trying to figure out what has been wrong with me for over 3 years!

Tighidden profile image
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My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but never send me to the hospital? I have been chasing a wild goose for the last three years with Lyme Disease and have not gotten better.

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Tighidden
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MaryF profile image
MaryFAdministrator

I hope you feel ok to put these questions to your doctor/.rheumatologist, lots of conditions appear to have overlapping symptoms APS and also something called CRPS. I hope your questions get answered clearly for you, and often blood tests done sooner rather than later can provide some answers. Good luck with your investigations.

Hi

Some of these symptoms do sound familiar but you must go and speak to your GP about it - take some literature from the website or on here if you think it will strengthen your case. It is certainly possible to have many smaller clots but only blood tests and scans will tell you if that is what has happened.

Good luck I hope you get your answers soon.

Take care

Tx

Did you get any answers?

Take care

Tx

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