B12 deficiency

[Calver10]

Hi has anyone been diagnosed with a B12 deficiency and did it affect your Hugh's syndrome Thanks

[HollyHeski Administrator]

Hi yes, I have B12 defiency, developed mainly from anti platelets and anticoageration, also from bile acid malabsorption. Totally controlled with meds and checked regularly.It's not affected my APS symptoms either.

[MaryF Administrator]

Yes, but mine was diagnosed out of the UK, I was on a supplement, (you only absorb, apparently about 1 percent of an oral supplement), but your levels look high in the very linear blood test done, (plenty more can be ordered but are not routinely ordered). I was out of the country and did tests and found it, I am much better on the injections, and I also take a B complex pill containing proper folate as your body needs a certain amount of folate to uptake the B12. All my pins and needles, some of my fatigue and strange sharp pains did fade away. MaryF

[Calver10 in reply to MaryF]

Hi Mary Thank you for your reply my B12 level was 155 and I will have another test before loading dose to see if I will need injections long term

[MaryF Administrator in reply to Calver10]

whatever you do don't take a supplement as it stays in your system for weeks and makes you look like levels are good, also pills do NOT work if you need them. Push for injections and the right supplement with Folate in it, checked by GP or specialist. MaryF