APS1. Nord

[Tennisbum]

I think a relative

More specific. To children but I have always used NORD without incident

Lots of good advise about rare and awaiting cures

A1 might have noticed all my inquiries about APS and assumed.

Many thank for all your posts Everything that helps is a step in the right direction.

Have a great weekend

Susan

[Star13]

I think you’re getting mixed up with what the different APS abbreviations stand for! What you have posted is for APS 1 which is a genetic disorder.

This site is for APS standing for Antiphospholipid Syndrome which is a autoimmune clotting disorder.

[lupus-support1 Administrator]

Hi!

This is why I requested you contact myself or the other Admins because this website doesn’t have anything to do with the Antiphospholipid Antibody (Hughes) Syndrome. I am removing the link.

Be well!

Ros

[Tennisbum in reply to lupus-support1]

I am so happy you caught that. I do hear a lot of people saying it is just like this. When it is definitely not.

Thank you

[lupus-support1 Administrator in reply to Tennisbum]

Your welcome!

[myarabella in reply to lupus-support1]

I am confused by your post. Why are you stating that this site has nothing to do with APS (Antiphospholipid Antibody Syndrome)? That all we discuss on this forum.

[Tennisbum in reply to myarabella]

Correct someone sent me a Aps1 massive email I did not realize there was a disorder Aps1that was not us. There seems to be a lot of new Aps support groups forming such as Aps action so on I do read them also. I think someone did not know we are only APS.

[lupus-support1 Administrator in reply to myarabella]

I am one of the Admins for this site. The web link in the original post had nothing to do with APS (Hughes Syndrome) but a genetic disorder. The poster, Tennisbum, acknowledges the error. That is why the link has been removed.