Any advice before going in for an op with aps?

[Charts]

I'm going in for an op tomorrow on my ear and I'm nervous because of my diagnosis with aps. Anything I should know I should or shouldn't be doing? I'm not confident in their knowledge so may I need to tell them anything?

[lupus-support1 Administrator]

Sorry to read you need an operation. What’s the operation? I assume you have contacted your haematologist to discuss what is required?

With good wishes,

Ros

[Charts in reply to lupus-support1]

I've seen a anesthesiologist so they are aware (hopefully they know enough) I have a retracted eardrum, so they need to cut behind my ear from top to bottom and fix it. I get it fixed and it happens it happens again!Thanks for your reply

Nina

[lupus-support1 Administrator in reply to Charts]

Nina, I am sorry to read this keeps happening!

I understand your concerns and wish you a speedy and complete recovery.

Ros

[Charts in reply to lupus-support1]

Awww thank you!

[GinaD]

Your APS doc should be in your medical loop.

[Charts in reply to GinaD]

He don't get involved in anything. He don't seem to understand aps well, well especially anything neurological I mention. Woke up after operation having seizures/spasms don't know what it is to be honest and no one got any answer's why I'm reacting

[Womanfriday]

I'm so sorry you've reacted like this. If you're going to be in bed for a few days, make sure they give you surgical stockings to keep your circulation moving. And of course keep taking all your medication.Otherwise I'm afraid you're probably in the best place.

[Charts in reply to Womanfriday]

I wear stockings daily as I have pots syndrome and they help with that. I just go got to ride the storm for nowThanks

[Jillymo in reply to Charts]

Have they checked your B12 and Folate ? It is possible that the anaesthetic could lower your B 12 levels hence the seizures ! Just a thought but one thats worth checking out.

I underwent a similar operation for a perforated eardrum when I were in my teens. Good luck and hope all goes well. 💐

[Charts in reply to Jillymo]

Yeah I'm in hospital now and they've checked all my bloodsThanks you

[MaryF Administrator in reply to Jillymo]

Good idea. MaryF

[MaryF Administrator]

I hope your operation went well and that you are now recovering well?? MaryF

[Charts in reply to MaryF]

I currently back in hospital from having spasms all over, even in my face. They gave me diazepam and stopped it. No one has ever tried anything to stop. It's all been really bad since my op

[Bloodredroses]

REST let immune recover if APS .