Specialist in Eastbourne area

[Molly100]

Hi does anyone have a specialist in the Eastbourne area for APS they can recommend please. I was diagnosed with APS years ago and have never seen a consultant in my area at all.

[MaryF Administrator]

Hi, I am sure you will get some local replies, obviously you are also well placed for London also, with regard to trains etc travel, I enclose this for you. ghicworld.org/ghic-consulta... MaryF

[1dayatatime]

Hi Molly I live in Eastbourne. I am under the local Rheumatology Team in the DGH as I have Lupus & APS. Before Covid struck I was under the care of Prof D’Cruz at Guys also seeing him every year but I got discharged last Jan along with 2,000 other patients as the hospital could not cope with Covid so those 2,000 patients went back to their local hospitals. Whilst at Guys the care is faultless, I also saw a Neurologist who confirmed my APS was causing Hemiplegic Migraines., then prescribed me the correct medication to control them. The care at Guys is second to none, the Lupus Clinic covers APS too and Prof D’Cruz is outstanding. If you can get to see him, I definitely would. It is a centre of excellence. Wishing you all the luck in getting referred and offered an appt there. Take care now.

[Molly100 in reply to 1dayatatime]

Prof D'Cruz diagnosed me about 8 years ago now, although I have been on Warfarin since the 1990s. I wanted a local APS specialist as I am having trouble with the menopause. Also there is no one that I know locally who has APS and sometimes you just feel out on a limb really.

Many thanks

Sue

[1dayatatime in reply to Molly100]

Hi Sue early last year Prof D'Cruz contacted Beverley Hunt at Guys and I had a written letter confirming that I can have HRT Patches for the Menopause and I have been using them ever since and the hot flushes have completely disappeared. Might be worth a try with your GP? As we live locally I'm happy to meet up with you (I suppose it will need to be outside because of Covid) or we could speak over the phone? It would be nice for me too, to have someone that understands the complexities of APS. Take care now x