Polymorphic light eruption? - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

Polymorphic light eruption?

bathouse profile image
14 Replies

Hi all, hope you are all keeping ok, can I ask your advice please?

Got blisters/hot/itchy skin on arms and feet only. I had sun cream on arms but not on feet and both areas affected the same. Where my flip flops had been there is no rash/blisters.

Never had this before, only just finished an 8 week course of steroids after really bad flare after first Astra Zeneca vaccine, can’t help but feels his skin reaction it’s all linked?

Anyone else suffered this?

Thanks everyone x

Written by
bathouse profile image
bathouse
To view profiles and participate in discussions please or .
Read more about...
14 Replies

Hi. I am so sorry you are having this reaction. I am not sure where you live, but I know if you contact the frontline doctors they help with vaccine injuries. Or can maybe guide you to someone in your country. Use DuckDuckGo search engine to find them. My prayers are with you

bathouse profile image
bathouse in reply to

Many thanks, in Bedfordshire UK, yes we use Duckduckgo, thank you x

MaryF profile image
MaryFAdministrator

Hiya, it may be linked, I know I am having reactions myself, so please see your GP/specialist and forward any photographs to them for your records. MaryF

bathouse profile image
bathouse in reply toMaryF

Thanks Mary, sorry to hear you are having some issues too, i will take your advice, you are always so helpful, x

Sevenstar profile image
Sevenstar in reply toMaryF

Sorry to hear that Mary F , are these new issues on top of your usual things , my skin has gone bonkers !

MaryF profile image
MaryFAdministrator in reply toSevenstar

I have Stevens Johnson Disease and many other things, so knew I would react. MaryF

Sevenstar profile image
Sevenstar

Yes me ! I've had dreadful photo sensitivity since mine way more than I've ever had , before they were manageable but right now, off the scale , red eruptions on face neck and chest , can't even sit in the car or walk down the street in the sun , my usual factor 50 plus protective clothing and hats isn't cutting it! Saw my dermatologist yesterday and he's getting a lot of patients with new sun light allergies etc ! Hope it settles soon for you!

bathouse profile image
bathouse in reply toSevenstar

Thank you for your reply. I am sorry to hear that you are having issues too. Did your dermatologist have any advice (except keep out of the sun)?Thanks x

Sevenstar profile image
Sevenstar in reply tobathouse

No sadly, he's given me some antibiotics just in case , apparently things can settle a bit with them , but absolutely stay out of the sun , cover up and plenty of cream ! I've been very disobedient of late , always think I'm ok when I'm not , but after seeing him I've not been outside in the in bright sunlight and guess what , it's setting down ! Time will tell !

bathouse profile image
bathouse in reply toSevenstar

Thank you x

KellyInTexas profile image
KellyInTexasAdministrator

Hello bat house,

I posted a pic of mine maybe a year ago. I had another quire rough episode in the early spring as a woman I know “trapped” me in conversation in the beautiful spring sunshine for about 8 min only I’d say... I finally had to excuse myself...

My rheumatologist diagnosed me with SCLE.

He was very clear it was not the same as SLE, but could damage organs none the less. So stay out of the sun, and wear protective clothing. A tighter weave material he said, as he noted my loose , breathable linen... ( especially a wide brimmed hat.)

He mentioned it was oftentimes associated with Sjögren’s- which I also have.

I also have a low lupus.

bathouse profile image
bathouse

That is interesting, thanks for taking the time to let me know.I have tested negative for Sjogrens but have severe dry eyes which i have treatment for and punctal plugs.

I just find its one thing after another, feel like a hypochondriac there are so many things affected x

KellyInTexas profile image
KellyInTexasAdministrator in reply tobathouse

My rheumatologist said Sjögren’s can be present , and the test can lag several years behind. He would say “sicca syndrome, early Sjögren’s syndrome without antibodies” maybe?

I don’t know...

bathouse profile image
bathouse in reply toKellyInTexas

Thank you, really appreciate your help, just reading about SCLE and that it can be drug induced, I am on lansoprazole.

Not what you're looking for?

You may also like...

Strange discolouration on lower legs

A few days ago I suddenly noticed that lower legs had gone a bit purply/bluey colour but what was...
Squeezer profile image

skin problems - dec 26 2011

dec 26 2011 had bad reaction to something they cant identify , body from neck down to ankles broke...
jetjetjet profile image

Small water blisters below my knees.

I’ve got APS and since being diagnosed with it my circulation is very poor and both legs (below the...
Teanna profile image

Burning feet but nothing to see.

Does anybody have any idea what the cause is of burning feet. My right is the worst, the top burns...
Jade profile image

Just more problems

Hi all well the last couple of months i have been having loss of mobility turns my head to the left...
jetjetjet profile image

Moderation team

See all
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.