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Hughes Syndrome APS Forum

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Memory

Mermaidatheart profile image
10 Replies

I usually only reply to others here, but I have a post today.

Recently my phone did a factory reset. I lost all my apps, photos, texts, calender, emails, passwords, etc. I was soooo upset! I made it through the weekend to Monday so that I could visit my cell phone savior at the store. I do not know how she did it, but she was able to find my texts & photos. (well all my photos from 2019 and backwards) I was so grateful I cried! I cried when it happened as well.

I told my husband it upset me because my phone IS my memory. It felt like when I first had my stroke and my brain was wiped clean and I was starting over. Just like my phone, some memories I do not and cannot recover, so I document all that I can. Maybe I was thinking too much about it, but that is what is felt like at the time.

Has anyone ever had something occur to them that made you feel similiar?

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Mermaidatheart profile image
Mermaidatheart
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10 Replies
HollyHeski profile image
HollyHeskiAdministrator

Oh how terrible, so grateful you got most of your phone memory back.You must be exhausted now with all that stress, take care of yourself.

My husband and I have both our phones backed onto Samsung cloud, I've had strokes and he has had a brain injury, our photos, contacts and our diaries are all linked, so if one phone goes down, information can be got from the other one. Not totally safe proof.

Mermaidatheart profile image
Mermaidatheart in reply to HollyHeski

Working on the taking care of myself part....have a cold sore from the stress! Jeez, and I have a big family photo coming up soon! Abreva here I come

KellyInTexas profile image
KellyInTexasAdministrator

I often feel insecure in the world at the best of times. Our brains being computers with frequently malfunctioning software programs are not what we were ever trained for in any way...

But yet now we literally are. In OT, PT...

Yesterday my family found the dry kitty kibble in the fridge... ( I had a migraine and I low inr. )

Gotta honestly laugh. I must have struggled to make that fit... no memory.

Mermaidatheart profile image
Mermaidatheart in reply to KellyInTexas

Well maybe the kitty prefers cold kibble?🙀😺😜😆

KellyInTexas profile image
KellyInTexasAdministrator in reply to Mermaidatheart

Let’s just say she’s not exactly thin!

Ozchick profile image
Ozchick

My walk buddy recently washed her iPhone for a 15 min wash and it was unsalvageable. I asked if she had iCloud for her back up? She had no idea so next day she bought a new phone (as the phone repairer was going to charge early as much as the cost of a phone to repair with no guarantee) and she bought it and her iPad over and i recovered pretty much everything including her pics of grandkids living o/seas. I charged her a cup of coffee for my expertise! I also told her it was lucky she didn't come on a day when my brain was functioning at less than 50%-else I may not have been able to help. :)I spent 45mins trying to connect to a Zoom meeting on Monday before I realsed the meeting was for Tuesday!!

Mermaidatheart profile image
Mermaidatheart in reply to Ozchick

That is super nice you did that for her phone! I helped homeschool two of my grandkids for the end of the school year before summer and that required zoom or similar for classes....that was an interesting challenge for a bit! I watched the lessons for math from their teachers because that part of my brain needs a little help. I even thanked the teacher for the lessons!

GinaD profile image
GinaD

Glad you recovered the data. My husband is a professional computer guy, and he always nags me to keep appointments and contact info on paper calendars and address books as fool proof back ups. I'm lay so I do not always do that. But just like paper back ups on voting machines, paper records don't lie or fizzle up into space with no warning.

Mermaidatheart profile image
Mermaidatheart in reply to GinaD

Yes, my husband likes the paper calender as well! I have learned my lesson and now I have scheduled back up on my cell.....😁

MaryF profile image
MaryFAdministrator

It is very stressful when these things happen. We once lost all our car keys to each Vehicle and the spares, and we were due out to a really important appointment the other side o f the country. I eventually rang up a friend who I knew was friends with the previous owner of one of the vehicles... they rang up their uncle, who still had a spare key to that particular car on a nail in his garage, they drove over with the key, naturally immediately after this, all keys turned up, together in quick succession, all in really mysterious places. I don't drive, so not myself! Clearly we had gremlins that day. MaryF

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