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Hughes Syndrome APS Forum

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Beta2Glycoprotein1 IgM positive for APS - anyone the same?

Uzoigwe profile image
9 Replies

Hi ! I was recently diagnosed with APS after having a stroke. I tested positive only for Beta2

Glycoprotein1 Ig M. I tested positive for this 7 years ago, so it’s defiantly positive. Does

Anyone tested positive for this one marker, and if so how are you treating it - what anti coagulant? Now I am on 325 mg aspirin but warfarin is being discussed. I am 3

Weeks post stroke. Thank you for your input. This is so scary. I am in the US, 51 yrs old. No other symptoms - otherwise healthy. Hemotologist suggested this related to allergies.

9 Replies
MaryF profile image
MaryFAdministrator

Hi, it is important that you have a specialist who fully understands Hughes Syndrome/APS to help yourself and your GP safely manage this condition, there are some here on the charity website: ghicworld.org/medical-advis... We have a lot of members from the USA on here, plus KellyInTexas has great localised knowledge of the USA regarding specialists. Welcome, by the way. MaryF

Uzoigwe profile image
Uzoigwe in reply to MaryF

Thank you Mary!!!

Wittycjt profile image
Wittycjt

Im in delaware, are you close? I suggest they retest you for all APS studies as they all maybe positive now. Do you have any residual affects from the stroke? Weakness, etc?

Uzoigwe profile image
Uzoigwe in reply to Wittycjt

Hello! No, I am in California. They just retested after my stroke, on June 12. All negative except Beta2Glycoprotein1 IgM. I was very lucky with my stroke. Almost 4

Weeks post stroke and i have regained all my function. I have no symptoms of APS besides the stroke.

Wittycjt profile image
Wittycjt in reply to Uzoigwe

You are very fortunate make sure they anticoagulate you properly now so it wont recur... ive had 3 back to back when they did my open heart surgery and didnt anticoagulate me correctly. It took alot of rehab to get me back to my quasy self . Read my bio- good luck

Uzoigwe profile image
Uzoigwe in reply to Wittycjt

I am on aspirin now - 325 mg. Hemotologist said I should be on antiplatelet therapy vs warfarin. Everything i read says I should be on warfarin. Do you think specialist would help? It would have to be a consult - online - as med insurance is with an HMO.

Wittycjt profile image
Wittycjt in reply to Uzoigwe

I would definitely consult a specialist

TwoH profile image
TwoH in reply to Uzoigwe

Definitely find someone who understands APS. You will be told that of course, a Hemotologist will understand it but many truly do not. I know it's not the best way to do it but I looked at Hemotologists online to see if APS was mentioned in their studies or specialties. I also have a Rheumatologist who had another APS patient and referred me to someone.

Tofino5 profile image
Tofino5

I agree with the above, you need a specialist. APS/Hughes is complex, and many doctors don't have a feel for it. I'm in Colorado and I'm very fortunate to have a wonderful specialist right here. My situation is very different from yours. I'm very happy to hear you are fully recovered from the stroke.

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