Lupus anticoagulant update 4

[geoff0702]

Well it seems that Hughes syndrome specialists are not quite upto scratch at Sheffield.

Had a letter from Sheffield today, wife is on as much deltaparin as she's gonna get, depending on test on 30th. Limb issue is down to neurological problems.

This despite the consulant seeing wife on 15000 units with one arm, then seeing her with all limbs, sat on edge of couch with 17500 units. No doubt will see my wife on 30th with just one arm again, because she's back on 15000 units.

Looks like trying to get to see Professor Ian Bruce at Manchester, who apparently my wife's consultants haven't heard of.

[lupus-support1 Administrator]

Good grief! I hope your wife is seen soon by Prof. Bruce.

With good wishes,

Ros

[KellyInTexas Administrator]

Do you have a date set with Professor Bruce?

My limbs do very funny things with too little anticoagulation.

[geoff0702 in reply to KellyInTexas]

Not yet, got to change doctors, ours retiring and get them to put referral in. Good news wife seems to be less fatigued on deltaparin, it's just her limbs playing up

[geoff0702]

Well as predicted, life on 15000 units of deltaparin is a nightmare, lucky to have one arm that she can use.

Good news managed to get Sheffield to trial warfrin with a range of 3-4. As long as neurological symptoms go away. If I have anything to do with it, it will be permanent!

Just waiting for GP to catch up and start warfrin, dispite they've had letter for a month!

You'd have thought Sheffield would have started her at the appointment.

[geoff0702]

Well finally good news, actually got hold of my wife's GP! The GP has referred wife to see Professor Ian Bruce! Warfrin finally being sorted!

[KellyInTexas Administrator in reply to geoff0702]

Fantastic!

Dr Bruce will explain and set a ,” bridging “ plan also. ( with the LMWH.)

If her INR dips below a certain point, whatever that may be for her, usually 3.0, she can “ bridge” with a bit of LMWH until the warfarin -INR more specifically- kicks back up.

Warfarin and LMWH act on different arms of the clotting cascade. As you know, LMWH leaves the body very quickly- she will be given a lesser dose of LMWH for bridging when fully on warfarin. It will act as a little boost ( about 12 hours or less) while her INR comes back up in range.