My Leg This Morning/ Unstable INR - Hughes Syndrome A...

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My Leg This Morning/ Unstable INR

KellyInTexas profile image
KellyInTexasAdministrator
10 Replies

Does any one experience "blanching" white spots with a red dot in the middle with their livido? Not raised/ not a rash. Does not itch. Quite benign. No doctor can explain. They think it's "vascular". Photo at funny angle- thigh is not swollen above knee- just appears dis proportionate... is this common with APS? If so, what is it? Why does it happen, these funny white blanching spots? What is the red dot ( capillary? ) in the middle?

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KellyInTexas profile image
KellyInTexas
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Wittycjt profile image
Wittycjt

Some leg you got there!😀 some peeps will do anything to show off their legs🤣

KellyInTexas profile image
KellyInTexasAdministrator in reply to Wittycjt

They are looking rather sexy! The corpse look ( blue and moddled) is all the rage this spring...

Lure2 profile image
Lure2

The white spot I do not know... but to me it looks like some sort of Livedo Reticularis. When you get it do you have low INR at the same time as my Livedo disappeared like most symptoms of our disease when I was properly anticoagulated? Do you have it all the time? Only one Doctor has seen my "signs".

Kerstin

KellyInTexas profile image
KellyInTexasAdministrator in reply to Lure2

No, most of the time I do not have this. I can have the white "blanched "spots with or without the livido r. The livido r seems to be independent of my INR, however, I have yet to be properly anticoagulated for any length of time. ( certainly not more than one week.)

MaryF profile image
MaryFAdministrator

I think what you are being told about 'pooling' by Hidden is accurate, I have seen this in other people, and goes along with the Livedo Reticularis. Always good to have photographic evidence though. MaryF

KellyInTexas profile image
KellyInTexasAdministrator in reply to MaryF

you have seen the blanching white spots? With the red dots in the center? Wow! Finally! It does indeed go along with livido r. Ok. Perfect. Because I can have the funny white spots independent of the livido r I wasn't sure. My doctors have been completely baffled . Even con warfarin that want me to go in " when it happens" and have it biopsied."

?????

No!!!! This is NOT smart! On warfarin? What will a biopsy show? If they don't know looking at it what do they think they could learn by investigating under histology parameters? Or nerve studies?

I'm happy to hear your confirmation on this.

MaryF profile image
MaryFAdministrator in reply to KellyInTexas

I am not medically trained in any way, but Lynn gave you a great answer seeing as she gets that herself! MaryF

Jo60 profile image
Jo60

Looks like my legs too!

I won't wear shorts as I'm so self-conscious of the splodgy appearance of my legs :(

KellyInTexas profile image
KellyInTexasAdministrator in reply to Jo60

It's a shame... then again, you can always go with my fashion response to wittycjt! ( we just have to get creative, you know.)

KellyInTexas profile image
KellyInTexasAdministrator

I can get it at any time. I can get the white "blanching spots" independent from livido r. They can last for several days . They can be up and down arms as well and across my shoulders as well, not typically where one ,"pools blood." But it does often accompany the classic livido r as well.

Yes, the livido r is classic APS and I believe is circulatory. I hope it will improve with a higher INR . We are still working that out- having transition hiccups between the LMWH and Warfarin

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