I see my consultant next Thursday so will ask her opinion on this too.
Does anyone have jumpy vision? It's quite difficult to explain. If I focus on anything it feels like my vision is vibrating. It's very difficult to explain. It also sometimes looks like there's a heat wave in my line of sight and straight lines look wobbly. I've had it for around 2ish years but it seems more prominent at the moment.
I have seen ophthalmology a few times but they've never seemed overly concerned about this.
Maybe you need a medication review in terms of INR! MaryF
I currently self test and my range is 3-4 and pretty stable at the moment. I'm wondering whether it could be blood pressure related as I can sometimes have high BP but not needed meds for a few years.
Hi Tinythepanda,
Do you take your bloodpressure at home with a machine like I do, or how do you know it is high sometimes?
I had very high bloodpressure before Warfarin and even if I had 3 different bloodpressure/heart drugs I still had high bloodpressure. I had eye-symptoms and TIAs and perhaps my high bloodpressure made my eye-situation worse.
After i had started Warfarin my bloodpressure was much better but still I have to take those drugs to keep it normal.
High bloodpressure often goes with APS and can lead to other severe symptoms if not reduced.
Best wishes from Kerstin in Stockholm
My high BP started during pregnancy and stuck around for a few years. It's always on the high side when ever I have an apt but I think it may just be white coat syndrome. I had a 24 hour tape after my Tia's and it was ok but that was almost 2 years ago.
During pregnancy and for a couple of years after I required 2 different types of tablets to control it.
I think I may have my old bp monitor somewhere so may dig it out and keep a check on it.
Thanks for the input ladies. Much appreciated as always.
Yes you explained what I've had for years with my eyes! I'm not sure I understand the answers about BP? I had hi BP during pregnancy and after my pregnancy had my first TIA! Don't know , but I do have Sjogrens Syndrome and thought that was why my eyes jump or go out of focus!
I had very high BP before I started Warfarin and was eating drugs for it. After Warfarin my BP is usually normal but still I take the same drugs for it and for my heart. We should not have high bloodpressure with APS! It took 10 years with APS before I started Warfarin.
I do not think Sjögrens give you those symptoms but APS does. Important to get your BP down! I now have Pulmonary Hypertension.
Godspeed Deb
Kerstin
Debbeb01 ~ Hypothyroid not controlled? xx
Hope this helps!
I may have had something similar to that a few times. Tried to describe to my GP at the time which was one of my 2-3 symptoms about four years pre-diagnosis. I described it as oscillating (slow), but I can see (no pun intended) how you could also say a slow vibration or separation depending upon the object your fixated upon; later on described as "oscillopsia". When it happened to me once, I was sitting looking at carpet patterns in doctors exam room and the vertical lines started to slowly move crossing over each other and then back into position several times slowly.
Another experience was like watching pinokio's nose slowly grow elongated and then shrink back down.
Another time I was looking at my bedroom blinds and they started to separate and cross into each other.
Another time it involved looking at the ceiling and it started moving, but not like vertigo, more side to side movements.
Another experience was when I was sitting in an office looking out the window at an concrete island traffic separator in the middle of the parking lot and the tip of it started to move forward about five feet slowly and then back into position and repeat.
Please do let me know what you find out from your doctor appointment.
This was the only place I could find a "close" description of what I was experiencing, not sure it is exact same as your experience:
en.wikipedia.org/wiki/Antip...
Partial taken from wikipedia: …….. Other common findings, although not part of the APS classification criteria, are low platelet count, heart valve disease, and livedo reticularis. There are also associations between antiphospholipid antibodies and headaches, migraines, and oscillopsia.[4] Some studies have shown the presence of antiphospholipid antibodies in the blood and spinal fluid of patients with psychological symptoms.[5] Very few patients with primary APS go on to develop SLE.
Maybe the issue has to do with not enough anticoagulation, but you must conference with your medical advisor about that.
And finally: Oscillopsia. Video of what you might be experiencing:
dizziness-and-balance.com/d...
From Wikipedia, the free encyclopedia
Oscillopsia is a visual disturbance in which objects in the visual field appear to oscillate. The severity of the effect may range from a mild blurring to rapid and periodic jumping. Oscillopsia is an incapacitating condition experienced by many patients with neurological disorders.[1] It may be the result of ocular instability occurring after the ocular motor system is affected, no longer holding images steady on the retina. A change in the magnitude of the vestibulo-ocular reflex due to vestibular disease can also lead to oscillopsia during rapid head movements.[2] Oscillopsia may also be caused by involuntary eye movements such as nystagmus, or impaired coordination in the visual cortex (especially due to toxins) and is one of the symptoms of superior canal dehiscence syndrome. Sufferers may experience dizziness and nausea. Oscillopsia can also be used as a quantitative test to document aminoglycoside toxicity. Permanent oscillopsia can arise from an impairment of the ocular system that serves to maintain ocular stability.[3] Paroxysmal oscillopsia can be due to an abnormal hyperactivity in the peripheral ocular or vestibular system.[3]
Permanent oscillopsia due to impairment of the ocular stabilizing systems[edit]
Ocular stability is maintained by three different ocular motor systems
The fixation system[3]
The visuo-vestibular stabilizing system[3]
Neural integrator[3]
1. The fixation system and its deficit
In the fixation system, the ocular motor noise that comes from microsaccades, microtremors and slow drifts (all necessary for important perceptual functions) are limited by the visual and cerebellar ocular motor feedback loops. The frontal basal ganglia and cerebellar network also helps to provide correct saccades and inhibit unwanted saccades for fixation.[3]
A deficit in this fixation system results in ocular instability that mainly leads to acquired pendular nystagmus and saccadic intrusions. Acquired pendular nystagmus is seen in a variety of conditions with the two most frequent being multiple sclerosis and oculopalatal tremor.[3]
2. The visuo-vestibular stabilizing systems and their deficits
The vestibular and visual ocular stabilizing systems interact together in order to maintain the image of the visual scene steady on the retina during a head and body displacement situation.[3]
A deficit in these vestibular or visual ocular stabilizing systems may result in ocular instability due to pathological jerk nystagmus. The vestibulo-ocular reflex deficit (especially when bilateral) and a deficit of vestibulo-ocular reflex inhibition can result in oscillopsia and impaired visual acuity during head and body displacement.[3]
3. The neural integrator and its deficit
The neural integrator helps to maintain a constant innervation of extra-ocular eye muscles to avoid backward drift of the eyes.[3]
A deficit in the neural integrator can result in gaze-evoked nystagmus and oscillopsia in the eccentric eye position.[3]
References[edit]
Jump up ^ Tilikete, Caroline; Vighetto, Alain (February 2011). "Oscillopsia". Current Opinion in Neurology. 24 (1): 38–43. doi:10.1097/WCO.0b013e328341e3b5. PMID 21102332. Retrieved 6 May 2012.
Jump up ^ Straube, A.; Leigh, R. J.; Bronstein, A.; Heide, W.; Riordan-Eva, P.; Tijssen, C. C.; Dehaene, I.; Straumann, D. (2004). "EFNS task force - therapy of nystagmus and oscillopsia" (PDF). European Journal of Neurology. 11: 83–89. doi:10.1046/j.1468-1331.2003.00754.x. Retrieved 6 May 2012.
^ Jump up to: a b c d e f g h i j k Tilikete, Caroline; Vighetto, Alain (February 2011). "Oscillopsia : Causes and Management". Current Opinion in Neurology. 24 (1): 38–43. doi:10.1097/WCO.0b013e328341e3b5. PMID 21102332.
I don't have any answers but u wanted to chime in that I have experienced this frequently for the last 5 or so years! I've never had any luck speaking with doctors about it, they always suggest that it's an ocular migraine. I gave up searching for answers and just live with it. I suspect I'm poorly treated for APS though and am searching for the right specialist, thanks to the wonderful people here.
I have jumping vision when I try to fixate on things. Like when I look at something i can't get a fixed image. It's debilitating! I just want my eyes to stay STILL!
Did you ever solve this problem??
Hi Keithgray,
I have read that you are on another site here.
But I would like to know if you have got a Doctor who would take the antibodies for APS as if could be possible that you have symptoms from our illness here. I am not saying you have APS but I had many eye-symptoms before I started anticoagulation.
We have too thick blood that has to be thinned. Why not take a bloodtest.
Are you on Warfarin at the moment?
Best wishes from Kerstin in Stockholm
Episodes of vision loss...
Blury vision
blind spots in your vision?
High inr, headache and funny vision
Does anyone suffering mind blowing headaches everyday despite taking your treatment ?
