I have been having problems for several years now, my doctor has not been terribly helpful and last year was treating my issues as diverticuar, so I changed my diet. Ended up in A&E taken by ambulance due to terrible pain on left side low down in pelvis. They carried aout an Xray and told me there was no diverticula flare up colon looked normal but i did have fibroids so go and see a gynaecologist.
Went yesterday had an ultra scan and the Radiologist said 'I have never seen anything like it before'! Anyway long and short of it is I have a cavity at top of uterus which is possibly filled with blood, the consultant told me that I have a tilted womb and a heart shaped uterus. Don't think this is really relevant. Anyway my question is does anyone out there with Huges know anything about this or has anyone had this happen to them? The consultant seems to think it is because of being on warfarin that could have been a factor. She does not think it is cancer but is going to do a Hysterocopy on me in near future.
Written by
Molly100
To view profiles and participate in discussions please or .
I too have a tilted uterus but apparently it's not uncommon; just a nuisance when they use a speculum.
I have had a few incidences of post menopausal bleeding investigated which is always scary but each time has been clear. Last year my gynae stripped out the lining of my uterus and put in a mirena coil. I wasn't sure I wanted it, but it has completely cured the problem and haven't had any problems since so I'm glad I did. Otherwise I would probably have been facing a hysterectomy by now.
I hope things work out for you - it's the uncertainty that's always the worst. When you get a date for your hysteroscopy don't forget that you need to come off your warfarin or they won't do it. And be prepared for some bleeding afterwards. Best if you can to take your own pads - hospital ones are pretty useless!!!
I actually did have the mirena fitted years ago and it was pretty awful!! I had it taken out in the end.
It is more this cavity filled with blood I am worried about, sounds pretty horrendous, and also I am so much discomfort but at least I know what is causing it.
I think having a tilted womb is common and my sister has one too, also my uterus is heart shaped apparently!! think i am a bit abnormal all over!!
thanks for heads up on pads though I will go prepared.
Yes I too have a tilted womb which makes sense as I also have a tilted pelvis – which my OB guessed-and he was right - -that one of my forebears was Amerindian.
Before I went on a gluten-free diet, I had many fibroids and horrendous bleeding. All gone now.
I do hope all of this is diagnosed and treated with as little discomfort and inconvenience as possible. Do let us know how things go.
Thought I'd chime in. I also have a tilted uterus and apparently it's also tiny. My gyn laughed about it last exam. Please keep us posted on what the doc's find. I've been having excrutiating pain the third week of the month which should be my menses but I had an ablation done years ago and don't bleed. Scan showed no evidence of fibroids/endometriosis but gyn is kind of treating me like I do. She doesn't know what's causing the pain.
I had severe endometriosis from a young age and several laser laporotomies to remove adhesions. As I got older I developed many fibroids. I was always in a lOT of pain, especially in my low back. Finally decided to have a hysterectomy and insisted they take my uterus in one piece due to the robotic morcellation issues goin on. It turned out that in addition to fibroids I also had adenomyosis which is very painful. My uterus weighed over 6 pounds. Thank God no cancer as my mother had both cervical and uterine cancer which is what prompted me to have a full hysterectomy in the first place even though it was dangerous because of the coumadin. Anyway, they had done multiple scans on me and had no idea about the adenomyosis. So I hope they get UT all sorted out and that it's something totally benign. Good luck to you and God Bless.
Sorry you're having issues. I don't want to scare you, but I need to be frank. Most the time a fibroid is no big deal. But sometimes, rarely, it can be an issue. It was mentioned above about NOT allowing the robotic morcellation. Talk to your doctor about getting the fibroids out as you just never know when a rare occurrence might happen. My wife had a fibroid that grew to the size of a bowling ball by the time it was taken out. Thankfully the obgyn had a low suspicion that it could be uterine cancer and did not want to use the robotic morcellation process. Had she done that my wife would have been automatic stage 4. It turned out to be Uterine Leiomyosarcoma. Again, I don't want to alarm you, but it is imperative that as many people as possible know about fibroids and the morcellator.
I had not heard of this robotic morcellator!! So defineltely wont be going down that path. My fibroids at present are not very big, biggest being about 3cm so they do not think that that can be causing pain/discomfort. I am going through the menopause although I know that does not mean they will shrink for definate, but my sisters did after menopause, so you never know.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Suzypawz story.
Numbness in legs
Rheumatology appointment .I am going to be Famous !
(A long one coffee ready?)
Sneddons syndrome?
Hospital Visit
