I was diagnosed at the age of 16, I'm now 41 with my first major blood clot (besides my placentas) I've been reading your stories & had NO CLUE there was so many of us out there with so much in common. I just thought I was weird & the only one out there. .. :0)
Wow! : I was diagnosed at the age of 1... - Hughes Syndrome A...
Wow!
Written by
Pearl-a
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MaryFAdministrator
Hi there and welcome, it is kind of a relief to not be alone with all this! I hope you find the forum useful, also do have a good read through the charity pages, lots of useful information on there: hughes-syndrome.org/
Keep well. MaryF
Hi and welcome to our friendly forum.
As my colleague, Mary has said, have a good look through our charity's website, where you will find lots of information.
Where are you from? This will help other members to give you local knowledge.
I'm sure that other members will reply to you soon.
Dave
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