are you aware?

[rolfe]

.. that Mr R Withrington Consultant Rheumatologist covering South East England has now retired, ?? my first and only appointment with him was on the day he retired . I have an appointment with another Dr. but im not sure if he has taken over from Dr W? by the way he prescribed planequil 200mgs daily which I have now been taking for 13 weeks I must say I am feeling a little better, although I still have bad tired days and fogginess I will mention this, at my next appointment (today 3:45) wish me luck.

regards Rose (Kent)

[Hidden]

Hi Rose

No, we weren't made aware of this and thanks so much for letting us know.

Would you recommend the other doctor you saw? I can write to them and ask if they'd like to be included in the list if you could let me have their name please.

Thanks again.

Kate

[rolfe in reply to Hidden]

Hi Kate I am seeing Dr Bali ( him/her) this afternoon at kent and Canterbury .

[Hidden in reply to rolfe]

Thanks Rose - do let us know how you get on with them and whether you would recommend them as an APS specialist. Hope it goes well

[MaryF Administrator]

Thank you for letting us know, I am sure Kate H will add the new doctor to the list of recommended specialists once it is clear if they have the whole picture with Hughes Syndrome/APS, thanks again. MaryF

[rolfe]

Hello again Dr F Bali was who I saw today, and he was most helpful . I now know that I have Sjogrens, and I am on Planequil 200mgs, he has increased the dose to 400mgs to help with my symptoms h(e also told me I was taking Warfarin for my Hughes , so now things are a little clearer. I go back in 6 months . I did mention my memory loss short term, he did say that it may be due to my stroke in 2012. he suggested I see my gp to get advice .

[Hidden in reply to rolfe]

That's really good news Rose I hope the increase in Plaquenil helps your symptoms.

I will definitely write to Dr Bali and ask if he'd like to be included in our directory. Could you please let me know which hospital he's working at?

Thank you,

Kate