Weird episodes.

Hey, how is everyone doing? I wanted to ask you guys a question about some weird episodes I've been having lately. I have these periods for up to an hour where I can feel my heart beating so fast in my chest, and also in my ears. When this happens, my heart rate is around 100 beats per minute. This can happen when I'm sitting down and not really doing any physical activities. It has got me worried. My INR has been staying really low even though I keep on going higher on my Warfarin dose. I wonder if the APS antibodies are high in my blood right now and causing this to happen. My latest INR have been 1.8, 2.5, and now 2.3. I know those are almost therapeutic for a regular person, but not for someone with APS. I've also been getting a lot of pain in my DVT leg. It is enough pain to make me want to go to the ER and get checked out for another DVT. There is no swelling though. I take pain medication daily for my leg pain, but yesterday and the day before they did nothing for the pain. It was like I was literally taking sugar pills. Any how, any advice would be greatly appreciated. Thanks!

[lloydyuk]

Hi sounds dreadful. Can I ask what your mood is like at the present time please?

I would also say your INR sounds too low from experience and what others have previously written.

Have you spoken to your GP/specialist about it. I personally must use clexane injunctions along side warfarin if my INR drops below a specific number until it's back to normal.

[CalebJacob]

Hi, this can be a sign of a thyroid problem, which is very common in people with APS. Worth getting checked out.

[merrohawk83]

Hi there - I also had this pounding in my chest and ears when I was on warfarin after DVT/PE. What is your target INR? I presume it is 2-3 as generally if you have had venous clots (rather than arterial) this is the standard INR target - in many cases even in those with APS. I am not a doctor so please check with your own APS specialist and GP. My INR target was 2-3. However, I switched over to Rivaroxaban nearly 2 months ago and the chest pounding and pounding in my ears/head have both stopped.

[Lure2]

Hi,

I think, if you still have pain and your heart rate is very high, you should go to the ER at once. We know our own body and when something changes that is not common.

You may regret that you did not afterwards.

Best wishes and take care from Kerstin in Stockholm

[MaryF Administrator]

Hi, you do need to get in touch with your GP and or specialist and let them know what is going on, I suggest you ask for a fairly swift appointment. It would be advisable to sort this out sooner rather than later, please let us know what they say. MaryF

[daisyd]

Hope you got an appointment yesterday or at least today as soon as possible, I would be really concerned and would probably go to ER especially with the pain in your leg. Sorry if I have worried you but I think it's important that you are seen ASAP, please let us know how you get on

[mozelle]

luv your 'name'

You could be having a-fibs---I would check it out with a cardiologist--the feeling you are describing is what I get and my cardio diagnosed it.

[Hidden]

Hey everyone, I'm fine. I never went to the doctors. The episodes have died down again. It might be heart related though because my EKG''s show non-diagnostic left ventricular hypertrophy. But the doctors said not to worry about it. My leg is better now. I had to take some strong pain killers, but the pain is under control. They switched me from short acting pain medication over to long acting ones. I take one pill a day and it works for 24 hours. My chest hurts all of the time. This all started after my PE's. Most of my doctors brush it off saying that my lungs should have healed by now. It's like pulling teeth to get them to do anything. I was lucky I finally found a pain doctor who doesn't think I'm a pill seeker. I really don't want to go back to the hospital unless something really noticeable happens. The only thing my pain doc found today when he examined me was that my blood pressure was 169 over 98. It is slightly elevated. That is it. Any how, I really appreciate all of your advice and support MaryF and all of the rest of you guys!

[Lure2]

Try to get an APS-Specialist who understands better. Also check your bloodpressure because it it not good to have it so high when you have both Diabetes and APS!

Good luck in the future

Kerstin in Stockholm