Appt. Guys: Had my first NHS appt. at... - Hughes Syndrome A...

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Appt. Guys

donnabrain profile image
4 Replies

Had my first NHS appt. at Guys with Proff khamashta today.

What a lovely man!

Had been messed around left right and centre over a period of ten years at St Thomas,s with seeing different people, being diagnosed, having the diagnosis refuted,re-intated (twice) and being discharged and re0referred (twice)

Eventually at a time when I was quite poorly and the GP had re-referred but they wouldn,t see me, I went to London Bridge and saw Prof Khamashta privately,who wrote to my GP asking for a short letter of refferal so I could see him again on the NHS.

He has said that none of that should have happened and that he will keep me in the system, reviewing me every six months.

I feel re-assured by this.

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donnabrain profile image
donnabrain
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donnabrain profile image
donnabrain

Sorry forgot, Happy New Year to you all.

Manofmendip profile image
Manofmendip

Great news. Dave

Plumstead15 profile image
Plumstead15

very encouraging. I agree that Prof K is a lovely man and is willing to fight on one's behalf. I too am now in the system. I have my new GP on board too. Best Wishes for the new year. I hope your treatment continues to be positive for you.

fbenny profile image
fbenny

He did the same for me the beginning of last year. He is always lovely and is a brilliant man, so glad i found him.

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