Had my first NHS appt. at Guys with Proff khamashta today.
What a lovely man!
Had been messed around left right and centre over a period of ten years at St Thomas,s with seeing different people, being diagnosed, having the diagnosis refuted,re-intated (twice) and being discharged and re0referred (twice)
Eventually at a time when I was quite poorly and the GP had re-referred but they wouldn,t see me, I went to London Bridge and saw Prof Khamashta privately,who wrote to my GP asking for a short letter of refferal so I could see him again on the NHS.
He has said that none of that should have happened and that he will keep me in the system, reviewing me every six months.
I feel re-assured by this.