APS/Kidney/Bladder involvement

[crista1]

Hi. Could I ask how many people with APS/Lupus have kidney/bladder involvement?

I have just had a ultra sound on these areas. Blood and occasional protein in urine and pain/irritation lower tummy. Thank you x

[1818hst]

I had some blood in my urine for a period of months, but my GP told me it was probably because of a burst blood vessel during inter course. It was very worrying but all tests incl an ultra sound came back with no warnings or markers etc. It finally cleared on its own. How long have you had it?

[crista1 in reply to 1818hst]

Hi 1818hst.

Its been going on since 2013 on and off. But blood in urine picked up in October last year at the hospital and Jan and Feb this year at the hospital. Picked up via the doctors a number of times since. Seen by a locum at my surgery who ordered a ultra sound which I had last week. I'm likely worrying unnecessarily but it was the way he was talking to the other doctor and looking at the scan which is worrying me most!!

I have also bled when I shouldn't. Diagnosed with Endometrial Hyperplasia twice and wondering if it could be back. I should have my results next week hopefully. Thank you for replying. Take care. x

[loretta1106]

Hi: I've had blood in my urine for a long time, had a bladder biopsy and no cancer--but scarring of the bladder found. Just dx with APS in March after a stroke. I suspect it's one day at a time and one visit to the doctor for blood tests at a time. I try not to worry too much about the future affects of APS and just keep appts with necessary doctors, get my blood tested regularly and keep taking my Warfarin and Plaquenil and think positive. The occasional tiredness and joint pains are my main symptoms and some slurred speech now.

Be well and have a good day today.

[crista1 in reply to loretta1106]

Thank you Loretta. Hopefully they can find out the cause and treat it if needed. I hope you are well. I am still coming to terms with being told I do have APS and not feeling any more it has all been in my head. Take care x

[crista1]

Hi APsnotFab.

The pain is in my tummy too. Was uncomfortable when he was going over certain areas and nearly jumped off the bed at one point!

I'm not sure if its connected to the APS but will know hopefully this week. Hope your tummy isn't giving you trouble. Take care x

[Suzypawz]

Hi, I had gall stones & had to have gall bladder removed, kidney stones, continuously having bladder & kidney infections....wether any of it is due to Hughes?? we don't know?? but I must have bladder infections at least once every two months?

Hope you are ok, Sue

[crista1 in reply to Suzypawz]

Hi Sue. The infections are horrible. I have been to my doctors this afternoon for something else and the ultrasound results had come back. I have a small cyst on my left kidney and the right kidney is enlarged. I am also holding urine after I have been to the loo (I can't remember the % she mentioned!!). My doctor is now referring me to a urologist. She doesn't know much about APS so was unable to answer any questions about the link between the two. She said that if it had just been the cyst she wouldn't have referred me?

Hope you are well. Thank you for replying. x