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Hughes Syndrome APS Forum

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I've finally got the answers I have been after for 17 years. Saw a haemotologist and he is putting me on warfarin. I was so relieved to be

7 Replies

Believed that I cried when I walked out. I'm pleased that I am finally on medication but im nervous of side affects I have read about. Just hope I can start to feel normal now.

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7 Replies
Manofmendip profile image
Manofmendip

Hello and welcome

I'm glad you are feeing relieved.

Just a couple of questions:

1. Have you been diagnosed with APS/Hughes Syndrome?

2. Where are you from?

Best wishes.

Dave

in reply toManofmendip

Yes I was diagnosed with APS 17 years ago after a late miscarriage but apart from treatment during my 2 other pregnancies I was left not knowing what I should do or take. But recently I have been feeling worse so I pestered my GP to refer me. I'm from surrey.

Manofmendip profile image
Manofmendip

Where are you being referred to?

Lure2 profile image
Lure2

Congratulations

Lure2 profile image
Lure2 in reply toLure2

Forget about that. An error from Kerstin

Lure2 profile image
Lure2

Hi there. Do not be afraid of the side effekts. You are now safer for clots. Try to get lab-test very often (especially in the beginning) and keep CONSTANTY of what you put in your mouth. Make notes!!

I started warfarin almost 3 years ago and am now selftesting. Learn as much as possible about warfarin. I like warfarin as it saved my Life.

I am so glad for you and I understand that you are happy and also worried.

Stay at this site and let us hear how it goes! Hope you have a doctor that really knows APS. THAT is very important

Best wishes from Kerstin in Stockholm

Suzypawz profile image
Suzypawz

It is such a relief when we are finally diagnosed with a 'label' to what is going on with us......

I know I was, I know how you feel about the medication too as when I was 1st told to take warfarin I cried all night scared of the side effects? once I take them?....what ifs?...buts?....but in the end I made myself take them knowing that without them I stood a hell of a lot less chance :(

I hope you find the balance with it all soon enough....Sue x

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