Believed that I cried when I walked out. I'm pleased that I am finally on medication but im nervous of side affects I have read about. Just hope I can start to feel normal now.
I've finally got the answers I have b... - Hughes Syndrome A...
I've finally got the answers I have been after for 17 years. Saw a haemotologist and he is putting me on warfarin. I was so relieved to be
Hello and welcome
I'm glad you are feeing relieved.
Just a couple of questions:
1. Have you been diagnosed with APS/Hughes Syndrome?
2. Where are you from?
Best wishes.
Dave
Yes I was diagnosed with APS 17 years ago after a late miscarriage but apart from treatment during my 2 other pregnancies I was left not knowing what I should do or take. But recently I have been feeling worse so I pestered my GP to refer me. I'm from surrey.
Where are you being referred to?
Hi there. Do not be afraid of the side effekts. You are now safer for clots. Try to get lab-test very often (especially in the beginning) and keep CONSTANTY of what you put in your mouth. Make notes!!
I started warfarin almost 3 years ago and am now selftesting. Learn as much as possible about warfarin. I like warfarin as it saved my Life.
I am so glad for you and I understand that you are happy and also worried.
Stay at this site and let us hear how it goes! Hope you have a doctor that really knows APS. THAT is very important
Best wishes from Kerstin in Stockholm
It is such a relief when we are finally diagnosed with a 'label' to what is going on with us......
I know I was, I know how you feel about the medication too as when I was 1st told to take warfarin I cried all night scared of the side effects? once I take them?....what ifs?...buts?....but in the end I made myself take them knowing that without them I stood a hell of a lot less chance
I hope you find the balance with it all soon enough....Sue x