Severe heamoltic anaemia .anyone had this ? Just in hospital with it after suspected mumps. Anyone with any experience ?

[sangje]

[MaryF Administrator]

Hi there, I have not had this, but have done some reading for you: bloodjournal.hematologylibr... and ncbi.nlm.nih.gov/pubmed/168...

and a more detailed one here, so it is known about and quite widely written up: bloodjournal.hematologylibr...

I also read a case of a 12 year old boy who had this with Mumps and turned out to have APS!

Mary F x

[sangje]

Mary ! Thank you so.much tried to reply three times but kindle playing up.just to say you have helped no end feel more informed and reassurede. Hospitals should all have internet on wards and you should get an n.h.s bonus ! Thanks and love sangje x

[MaryF Administrator in reply to sangje]

Cheers for the feedback, hope you feel better soon. Mary F x

[pamcelis]

Hi sangje

I had a severe heamolitic anaemia about 5 years ago. So severe i was 1 month in ICU. I am still trying to recover as i have had other health issues due to aps. I took mabthera for 13 months and now i've been over 1.5 year with benlysta. If there's anything i can help you with, im here any time!

Pam

[sangje]

Thanks Pam that would be useful. They do not seem to be linking it with a.p.s.do you know what triggered yours ? I am currently on high dose steroids (prednisone) and washed transfusions. How. Long before you got back to work normal life or are you more compromised with the other complications ?