Has anyone have brain fog with ANTIPH... - Hughes Syndrome A...
Has anyone have brain fog with ANTIPHOSOLIPID syndrome?
Oh yes,yes,yes.
Well seems to be memory loss and brain fog . Can't function some days. I think its definitely part of Hughes. It also don't help with age.
Try to rest when your body is telling you that you are tired. Oh and bug your GP as much as you can if things get worse there is medicines out there. Oh and look on Hughes website that's good for info.
Andrea
Kind'a goes with the territory, must tell you. But! - that does not mean you give up or in to it. A person without APS can get memory loss by being lazy with their brains, we have the opportunity to USE our brains. What I mean is, puzzles and games that exercise the brains are no different than exercise for the body. And, it does make a difference. Well, heck, I still trip myself up socially and get embarrassed and/or laugh, but what I want to convey is that please don't let this stop you from doing all you can. And, as Andrea says, there are days that are better and days that are worse and do get rest. Rest is so important!
All the best!
Leigha
I am interested in making new recipes, reading and playing with my grandchildren. Thanks so much you are correct. Best to you.
Hi there, I get some very foggy days.. but I persist in trying to play the piano or writing, it is difficult, but would be worse if I did not so... my husband likes to laugh about the fact that the worse I am in terms of communication - the more elaborate the dinner menu is! However he is not so thrilled with the mess during and after! Mary F x
Yes, I used to get terrible brain fogs.
They improved on Warfarin and are even more improved on Fragmin.
Best wishes.
Dave
tk`s i agree with u , was going around for nearly 10 year`s with this syndrome thhen had TIA and pains and numbness in body so eventually put on warfrain took about 2 years to get body going but big difference my concentration better , the doctors wouldn`t listen to me all along , then i thaught i was going mad ha!, all doctors are reading this syndrome but very few know r meet some1 with it , ....and iv to tell them about it 1 doc i see for over 17 years said iam only patient ... least some are honest .
I feel bad for you. It is bad enough without a doctor that does not help you through it. If you see from responses we are not the "only patients" tks for responding take care.
tk`s i thaught i was going mad with all this and doc`s tell u nt to go on internet only 4 it u wouldn`t knw anything as doc`s in hospital don`t think meet that many with it only read on their book`s , in ireland there is no support group even my gp never heard of it ... at least nt on own ... bye
Thanks Dave I am on Warfin...still having trouble. I going to try the new drug Zelteltro (spelling) I will not need to b poked all the time and will also not limit my diet. Maybe it will also help with the fog. I will mention Fragmin to my doctor.
Thanks for your help take care.
Hi there - Xarelto is the trade name for the new oral anticoaulant, Rivaroxaban. This drug hasn't yet been approved for people with APS. There is a three centre trial taking place in London now and the results should be available next year some time. I do know of people with APS taking Rivaroxaban because they are unable to tolerate warfarin, but you should maybe point this out to your doctor?
I did also have terrible brain fog. It approved on Warfarin but it is important to have an INR high enough!
God luck and thank you for an important question related to APS.
Kerstin
You are welcome because I do appreciate your response. I am very self conscious
About it. I did mention it to my hematologist and he said he noticed. I felt much better letting him know. He said he would call my family and explain this to them. Not to my surprise they did notice. Please hang in there and talk about it. Stay in touch.
It's a biggie with lupoids but if u're lucky enough 2 have APS too it almost seems 2 hit u double at times! My life is 1 giant 'Post It' note lol!
Check out this link nhlbi.nih.gov/health/health...
Sheri78
I understand I have huges syndrome which is is a blood disease it also causes brain fog. Get rest when you are tired. Brain Fog loves tiredness.
Yes unfortunately brain fog is a symptom. I learned once they gor my blood levels right you will clear. I can always tell when my levels are low. It feels like to me my head is in a vice. 😐 Sorry
Brain Fog from The Mighty
Hello I have Hughes Syndrome!
Hughs syndrome Having A raised INR
My girlfriend thinks she has Hughes syndrome
