Question regarding this site - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Question regarding this site

Jade profile image
Jade
12 Replies

I know it may be impossible but is there a way this site can display which recent posts and questions have received a response?

Like Facebook where you have the number of replies so you know what to look back at, or as some other sites do, the posts come back to the top when they have had a reply.

I am forgetting hat I have written or read so don't get to see if there is a reply, plus the layout makes it feel like posts have vanished down into a black hole.

Written by
Jade profile image
Jade
To view profiles and participate in discussions please or .
12 Replies
CanaryDiamond10 profile image
CanaryDiamond10

I agree. It also takes the "conversation" out of it. I can't see other people's responses and can't see what I have previously written..... it makes it difficult to participate and much like the loss of participation since the onset of the new site, soon participation will diminish because it will just take too much attention to flip all over to find the current conversation. I say this in the spirit of constructive criticism. It must be particularly difficult for new participants.

Jade profile image
Jade in reply to CanaryDiamond10

Me too. This site is a shadow of what it used to be, and its obvious that others are having problems too by the lack of posts and questions.

Sometimes things just don't need fixing if they ain't broke.

MaryF profile image
MaryFAdministrator

Please copy and paste and feed this question directly to HU themselves, they need to hear feedback from their customers, as believe me ADMINS across the board are feeding back likes and dislikes to them, from a variety of charities using this platform. Mary F x

Jade profile image
Jade in reply to MaryF

Mary sorry to be dumb but I can't copy and paste on my iPad, is there another way to get the complaint to HU?

CanaryDiamond10 profile image
CanaryDiamond10 in reply to Jade

I am sure a representative from HU is charged with monitoring a NEW site at it's launch. As Mary said, the administrators are relating their opinions pro and con and they are the patient representatives. I am sure they are passing along the patient opinions. Generally, a site such as this is monitored at least 6 months to a year by the "mother corporation (HU)" because there is much information to be gleaned to satisfy THEIR patients. Fund raising being the most outstanding. Also, it generally takes that long to work all the bugs out.

Ultimately, I agree with Jade. "If it ain't broke...don't fix it." Too bad, it's polls and questions and general banter they stimulate could benefit the clinical side as much as the patients. Particularly at the stage we are now where the patient is teaching the clinician about the disease. I hope it works itself out. It would be a shame to lose all the good it could do.

MaryF profile image
MaryFAdministrator in reply to Jade

Yes go into 'Help' in the top green bar and give feed back that way. Best of luck. Mary F x

SueLovett profile image
SueLovett

I have to say I much preferred the old format, much more user friendly and easier to navigate!

'If it ain't broke why fix it'?

MaryF profile image
MaryFAdministrator in reply to SueLovett

I hope it will become more user friendly for you, and do please direct any feedback to HU, via Help in the green band above. All the best. Mary F x

in reply to SueLovett

I know - it's caused much frustration all round but we're stuck with it now. As Mary suggests, please do give any feed back to HU - particularly if there are things not working as they should do or there is anything you think should be added.

I find it equally annoying when they move everything around in the supermarket, just when you've got the whole place sussed! Or every time you upgrade Microsoft Office - how many versions of Excel, Word and Access do we actually need and why do they all have to work differently?? Gggrrr :)

Leigha profile image
Leigha

I sure agree with everything that's being suggested here..... too tired today to add anything more, but glad for your input, Jade!

Jade profile image
Jade

Thanks for the info on copying and pasting and the link.

All done. I am proud. I feel like I have a magic finger now. Lol

YvonneW profile image
YvonneW

That assumes that everyone can afford a Mac - I can't.

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