Hep c: I just started harvoni!! Omg. I... - Hepatitis C Trust

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Drobot121 profile image
6 Replies

I just started harvoni!! Omg. I have never been so exhausted in my life. I also have headaches, diarrhea and even swollen joints.

Any advice on how to cope

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Drobot121
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6 Replies
Sillysausage234 profile image
Sillysausage234

Hi,and welcome when did you start harvoni?

Drobot121 profile image
Drobot121 in reply toSillysausage234

I started 2 weeks ago

Phillipaussie profile image
Phillipaussie

Hey there,just made it thru myself,firstly,relax,sorry for you being so unwell,things should settle,I had 8 weeks on Harvoni,it took a week to settle into what became my regime but then everything settled and here we are today,

Never had the dihorea, but swollen joints settled,

Here's how I did it.

Up at same time everyday to take meds, eat first,drink plenty of water,that's important,you will need to replace the fluid being drained anyway,within a few weeks I could make the headache subside by sticking to the regime, towards the 8 week mark,headache mild and manageable

It's really important to keep a water bottle handy,no excuse for not drinking ,

All things in moderation,eat wise,eat well.

Keep us posted as I'm interested in how you fair,hope this has helped,your target is in sight now and you will get there the peeps on this site are there when you need them,even at times when we think they are not.

Have faith in yourself and reach out if you need to,a lot of work time and effort has gone into your prognosis so fear not your on the right path.

I wish you well,look forward to seeing you at the end of all this,soon you too will have become that warrior and beaten the bug.

Aussiephil.

Drobot121 profile image
Drobot121 in reply toPhillipaussie

Thanks I needed the pep talk.

Phillipaussie profile image
Phillipaussie

Wow,hope your o.k. Wasn't a pep talk,more 1St hand advice,offered to hopefully put your mind at rest somewhat,we are all different and people will respond differently to treatment, what is important is your journey has started and fingers crossed you may be able to micro manage how well it goes,to some degree.

We are pioneering new anti viral drugs,I was 501 St person to get this miraculous treatment and your very close too.

Pretty soon we will both be reading the results we want.

Onwards and upwards.B-)

Aussiephil xx

Phillipaussie profile image
Phillipaussie

How I coped did 5 one week courses online and passed everyone, art painting drawing,music.

In between being bed bound with Porphyria on top of hep c with the drugs that I need for that become life threatening if mixed with hep drug,so I suffered one and treated the other,now I can be treated for the Porphyria...

The outcome is for me, personal development career wise, art that now hangs on my walls,and new art skills,can never have all of them,

Hope this helps,whatever works for You, make it your priority. Reap the benefits of an otherwise void period in your life,( being ill)

Good luck.

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