Return of Ectpics: anyone had Ectpics be... - Arrhythmia Alliance

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Return of Ectpics

Contra21
Contra21

anyone had Ectpics be calm for nearly a yr to only have them return? Do they ever go away for good?

54 Replies
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Still waiting for the day they go away

Contra21
Contra21 in reply to Padayn01

What's the longest yours have been absent?

Padayn01
Padayn01 in reply to Contra21

1 day at most

Contra21
Contra21 in reply to Padayn01

How long have you had them 4

Padayn01
Padayn01 in reply to Contra21

Since June every day since than, had abalation 13 months ago for AF

Contra21
Contra21 in reply to Padayn01

me 5 yrs for me i fear af wouldn't know what it is but a soon as i feel them i freak. Since Dec last yr ive been ok and lost 2 days in so scared they will come back as they were

Padayn01
Padayn01 in reply to Contra21

Is it just ectopics you suffer with? Have you ever had any AF? Have you had a 7 day holter monitor fitted? My guess if you have them for 5 years your cardiologist will not do much about them as they see them as harmless

Contra21
Contra21 in reply to Padayn01

Yup. Many holyers and they feel like death yet everyone says keep living ignore them

Contra21
Contra21 in reply to Padayn01

Did magnesium ever help you?

Padayn01
Padayn01 in reply to Contra21

Took it made no difference stop taking them now

Padayn01
Padayn01 in reply to Contra21

How many do you get a day roughly? Does any exercise help?

Contra21
Contra21 in reply to Padayn01

Was ok for months bit feel them 4 5 times a day from throat chest anywhere

Padayn01
Padayn01 in reply to Contra21

Sorry did you say 4 to 5 times a day? or 45 times a day, that is a low number of ectopics to have mine can go to a few hundred a day

Contra21
Contra21 in reply to Padayn01

I feel them now 4 to 5 , in 2016 17 was horrific and i fear being like that again.

Padayn01
Padayn01 in reply to Contra21

How bad where they in 2016,2017? Have you tried Magnesium? i find drinking coconut water and eating watermelon helps

Contra21
Contra21 in reply to Padayn01

Big hard thumps ptsd talking about it

Padayn01
Padayn01 in reply to Contra21

The anxiety around ectopics dont help either have you tried breathing exercises?

Contra21
Contra21 in reply to Padayn01

I have i think but they dont make them.stop.. do you get scared

Padayn01
Padayn01 in reply to Contra21

Yes they are horrible especially when you get 2 or 3 in a row horrible

Contra21
Contra21 in reply to Padayn01

Do you follow a diet how do you cope

Padayn01
Padayn01 in reply to Contra21

Yes a strict diet of very little carbs, no take away no fizzy drinks no alcohol, and do 15 hours fast from last meal to first meal the next day

Contra21
Contra21 in reply to Padayn01

That didn't sound good the carbs and fasting past. 9 ate freely this past yr was ok now i m scared there back

Padayn01
Padayn01 in reply to Contra21

Bread seems to play up my ectopics and fasting is good espically people with AF as it does not put pressure on the stomach to irritate the heart

Contra21
Contra21 in reply to Padayn01

I've been eating alot of bread lately

Padayn01
Padayn01 in reply to Contra21

Try going Gluten Free bread

Contra21
Contra21 in reply to Padayn01

So they may come and go or be around forever we just have to live with it??

Padayn01
Padayn01 in reply to Contra21

I’m afraid so some people on here said they have gone as quickly as they come I think the most important thing you can do is find your triggers and avoid them for me a good night sleep is very important

Contra21
Contra21 in reply to Padayn01

I never know as b I've had them 5 years and wouldn't know triggers

Contra21
Contra21 in reply to Contra21

i was ok for 6 mths until of late

Padayn01
Padayn01 in reply to Contra21

Did you not have any in 6 months?

Contra21
Contra21 in reply to Padayn01

Very minimal first time in 5 years now i felt then again.. i was eating whatever i wanted in that time

Contra21
Contra21 in reply to Padayn01

They can feel.like a pause then pump like not enough blood is getting to my heart

Padayn01
Padayn01 in reply to Contra21

You must know what things you eat or drink or stress that makes them worse?

Hello there, I still experience ectopics especially when I bend or when I take a deep breath. I had my ablation almost 2 years ago.

Hi. Yes I have. I’ve had them go away for years then come back with a vengeance, hang around again for months, then go away again without any known trigger. Of course I’d have the odd skip here and there during the “quiet “ years.

Back with vengeance 😱😱😱

Yes I had mine really badly every day for about a year- the ectopics were constant and made me really anxious at first, especially as they were especially bad at night and after eating- so I do sympathise with you. Mine eventually improved and although I get occasional bursts, I haven't had it anywhere near as badly for about 2 years now so there is hope! I take Magnesium every day as I do think it helps. I also avoid really big meals as I think it irritates the vagus nerve, which brings on ectopics. Good luck- I'm sure yours will settle down eventually and may not ever return as badly.

I've had continuous ectopic beats for 16 months, initially 5-6 a minute, now average 13 a minute. Unfortunately never gone away, I feel every single one of them.

Oh man this is just so unfair on all of us..

how do you cope with the fear

Too be fair, I've had them so long now, I'm not having a hear attack, they are just very annoying though!! I've had all the tests under the sun I'm on Bisoprolol 2.5mg (doesn't make a scrap of difference) It's just a constant missed beat/double beat. I just think now... they must be ok , coz' I'm still alive 😂

You try the magnesiun

No I've never considered it, wasn't ever mentioned to me as a good thing for SVE's by consultant.

I'm devastated they have come back. Quivers , thumps, pauses it stops me from living creates so much health anxiety!! Think about them all the time

I panicked BIG style when first diagnosed, but after many tests ECG's, Echo's, MRI scans, monitors for 24/72hours, 5 , 13, 28 days holters, memos and cardioscan. I have been told it's faulty electrics (SVE's and mild AF)

Honestly we are not having heart attacks or a stroke, it's piggin annoying, but it can't take over your enjoyment of life.

I found CBT a massive help to lower anxiety, I went through employment assistance programme (via my employer) invaluable to me regaining "me" back.

Please try not to worry about them, just go out, have fun and make some fabulous memories (even in this Covid19 bubble world) 😂

So hard that i feel them again, a yr ago i had echo had 3 since 2016 and all ok, but they cripple me and always have my hand on my throat again :( when do i worry?

I've just read your history, I too have a thyroid issue (multi nodule goiter) they are considering my palpitations could be due to thyroid. I've just paid privately for blood screening, as my GP refused to do whole bio (just tested thyroid and thyroid antibodies) not vitamins and all the other stuff.

I have a lump in my throat all the time, but it's not cardiac related it's thyroid nodules.

I dint want to go through it again, i was free since January now im scared again worried ill get something worse, i have low vit d below 50 amd low iron but it was like that thia time, going to get bloods again tomorrow

I've seen so many endos and they say its not related.

Had them intermittently for about 10 years and then constantly for about 10 years (average 5 missed/long beats per minute and atrial fibrillation, resting heart rate about 40/min, take anti-coagulant but no other medication or procedures, age 72) but doesn't interfere with quality of life including sports.

I know I'm lucky.

Contra21
Contra21 in reply to sheffbk

How do you keep going when you feel them?

sheffbk
sheffbk in reply to Contra21

I can't feel them during normal waking hours (but they're there - just check my pulse or an ecg), - in the quiet of the night I'm more aware if I listen but don't (usually) worry - as I said, I do know I'm lucky in this respect

Contra21
Contra21 in reply to sheffbk

Oh you have them but don't feel them! Wish i had that

ps I have a good diet but extra magnesium for 6 months seemed to make no difference at all, nor did other trialled changes (eg wine, coffee, bread)