Son 5 with SVT

[Vicsterk]

Hi,

My son is 5 years old and has had SVT since birth. His episodes happen quite regularly. He is on atenolol and he does a headstand and his heart rate generally goes back down within seconds. If this doesn’t work he has a cold shower and the shock of that generally works. The hospital want him to go on flecinide but I am worried about the side effects. His SVT used to be related to exercise but now are happening more randomly so I am more inclined to try it. Anyone have experience of this drug?

[wilsond]

My god daughter has the same and has been on flecanaide since 4nyears old,keeps her fairly stable.She will have an ablation or other interventionnwhen she is 12 or so.Otherwise she is well.

[Tompalp18]

Hi,

I’m 25 and suffered with SVT and ectopics since the age of 16.. I was put on flecanide after an admission to hospital after a bad run where I nearly passed out, originally just 50mg but was upped to 100mg and it really helped with my SVT.. not so much my ectopics but I saw a dramatic reduction in my SVT and I didn’t get side effects (other than they made my ectopics worse)

I had an ablation in March 2017 and haven’t had an SVT yet (touch wood)

Hope this helps and all the best for your boy

[Vicsterk in reply to Tompalp18]

Thanks for this it’s reassuring to know you didn’t get side effects. Hopefully your ablation was successful. Did you have ectopics before?

[Tompalp18]

Hi,

Yeah I had ectopics before as well as the SVT, so got rid of 50% of the problem now haha.

But yeah I had no side effects of the flecanide, I had mild ones when I was upped to 100mg but did not get anything on 50mg.

The ablation was successful I have had no SVT since so hopefully this will continue!