Since my tbi I cannot go any where there are fluroscent lights. After a short while I loose control over my right arm and head to the right continuously. It moves involuntary and I have no control over this. This does not happen under all bright lights, just fluroscents.
I was told it my last neuro appointment that this is all pschological, but he refused to listen when I said it was only under fluroscent lights. This was amongst other stuff he refused to listen to. The movment directly corresponds to the bleed I had which was on the left. It stops me going to a lot of places and I am unable to go back to work, because they refuse to change the lights even though Access to Work said I had a very good change of getting a grant (my work would not cooperate with them). I can have many seizure type events in this environment which make me very tired. The docs don't seem to care that all I pretty much do is sit at home because of it. I feel pretty much like I am rotting away. I am so tired with trying to get help and trying to get better, but everything has got worse since January and my speech is going down hill as well. My beautiful partner has kept me going through out all of this.
Doctors will not listen to this and a variety of other problems I am having post tbi. They make me feel like I am making it all up, oh but wait I landed inverted on top of my head at 35mph. I was told by one doctor to forget about this, I really wish I could.
What do you reckon?
Does anyone else have similar problems?
How do you get the docs to give your care?(my partner had to complain when I was in hospital as they were refusing to treat me after the lumbar puncture they performed started to leak and there own A and E said they could fix it. It seems, you complain about one doctor, you complain about them all).
Tens months on I want to get back to life, but most days I can't get out of bed. I don't know how to get help, so I can move on.
It seems like a brilliant site on here. I would appreciate any of your thoughts..