Epilepsy medication: I was diagnosed with a... - Headway

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Epilepsy medication

scotcher profile image
3 Replies

I was diagnosed with a Ganglioglioma tumour and Focal Epilepsy almost 3 years ago now. First medication was Keppra which made me tired all the time. Next I was given Lamotrigine which caused bad head pains. I am now on Pregabelin and often feel off balance and my memory has become dreadful. Over the last couple of days my seizures have come back with a vengence and I had 2 black outs within an hour so the medication is not controlling the seizures. I am frightened to change to another medication in case the side-effects are even worse than I already have. As I am in my early 60's now, do I stick with Pregabalin as I have been advised to up the dose? I have been told I may be sensitive to medication. Grateful for any advice / information or to hear of other people's experiences.

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scotcher
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ricozoe profile image
ricozoe

hi ,ive been given pheynitoin, bin on it fr 8mnths,my dr tried to chnge to keppra but tht made me feel sick, im ok on the pheynitoin, i hope u get sorted out soon.

Danslatete profile image
Danslatete

ricozoe, keep a list of the toxic effects of the phenytoin and stick it to a door somewhere in your home. My brother had a toxic build up that ended up putting him in a coma, but the toxic effects mimic other problems, it was overlooked at the hospital for 3 days.

Epilepsy medication can take a while to find a good match for you. there are a few to try and you need to be taking them long enough to see if they do suit as some side effects lessen over time. I take pregablin, i have had nuerontin too but that didnt agree with me. I dont take it for epilepsy though, i take it for nerve pain.

scotcher profile image
scotcher

ricozoe and Danslatete

When I was first diagnosed, I hoped medication would make me feel so much better as well as control the seizures... but it's not that easy! Nearly 3 years later the seizures seem to have got worse overnight and I feel no further forward. Been advised to up my morning dose of Pregabalin so am hoping I have become more tolerant of this medication. Thanks for the information it's been very helpful.

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