I have an acquired BI. Having had epilepsy all my life, finally diagnosed in late 90s with Complex Partial Seizures, it could not be controlled by meds. Therefore, in 2003 I underwent an Amygdalohippocampectomy which has helped in so far that this with meds now helps control my epilepsy, though still get auras and seizures if exhausted or very unwell, and have secondary generalised seizures now too. Though it has in all been an improvement from having 30+ complex partial seizures a day. The downsides are, memory loss for a ten year period, ongoing medium and long term memory problems, tiredness/fatigue, and anger/frustration problems, coupled with severe depression. Has anybody whose been in same position still having memory problems, that seem to never get better, and if so how do you and your partner / family cope with this? It has been 12 years since my op now and I am still struggling with this area of deficit in my life, and have coping strategies in place like digital reminders etc. But it still makes life so exhausting trying to hold down a full time job while struggling to remember what to do and so on. I am recently new to this site and have found the posts and advice from others on here a relegation.
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