I am keen to know if anyone out there has a child in a condition similar to my 16 month old daughter. She had seizures from the day she was born and we now know she has a mutation which means her neurotransmitters are completely out of whack. She is unlikely to recover, in fact, she's getting worse. No drugs have controlled the seizures nor the ketogenic diet. Her responsiveness is worsening. She is becoming vegetative. It feels like she has died already to be honest. It's terribly sad, but my husband and I have stayed strong. Is there anyone out there in a similar situation? How did you cope? and how do you care for your child now?