Just joined here in the hope of some information/support. Had a SAH three weeks ago after collapsing at home and Im feeling very depressed and scared at the moment. I am a 38 year old single mum of two children, the youngest being 21 months and I just want to return to being mum to my kids. Im having to stay at my dad's at the moment for help but really want to go home.
Im worrying everyday that Im going to have another haemorrhage and Im going to leave my kids. As you can see Im not in a great place right now.
If anybody has any information on SAH, recovery etc I would be very grateful. I apologise if I have written this in the wrong section.
Lisa.
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jord38
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Welcome to the club. ...I was where you are now five years ago...Five years on I am still a Mum and a Nanna. ...Everyday will be different, its only three weeks ,I was still unaware of who I was or where I was at three weeks.....and still in hospital...I'm so very happy for you that you are home with Dad ,well done you . You are amazing...and although you most certainly wont feel like it right now you are so not on your own....I'm sure the professionals at Headway will point you in all the right directions and all of us survivors are here as your friends....Really all I want to do is give you a great big hug....Its very early Days, but Things will get better . Loads of love ,Drusilla.
Bless you ,I know how scared you are....But I enjoy every day that I have now ,good or bad...and you will too, My first year was a long and an emotional one..Do you have facebook. ?
what can i say welcome to the club my sah in 2007 out of the blue one day on the back of a horse in spain of course i woke up in london 3 months later insistingf everything would be back to normal soon well not true life will be dramatically different the only advice i can give is to soldier on conquer your fears and there will be a daily diet of them be inspiured nby paralympians and every day be thank ful that you are here alive enhjjoy your children as much as possible celebrate every milestone first stand step drive of car leap at every invitation to go out with friends and return to something like normality never ever moan people detest moaners have enough of that from self styled celebrities recovery is not easy and i am 5 years on nor fast but reassure yourself every time you feel down or angry there will be lots of mood swings that to recover is pronbably your greatest tesyt ever to give up would be an insult to the many thousands and their families who do not recover lesser people we may be but we are survivors god bless neil murphy
Thank you for your post. I'm really sorry to hear about your SAH and the way you are feeling, and I hope we can help you at this difficult time.
Firstly, I'd suggest you contact our helpline on 0808 800 2244 or email helpline@headway.org.uk. Our helpline staff will be able to talk you through the situation and help you with emotional, medical, practical and family issues that you are coming across.
They will also be able to give you details of your local Headway group/branch, who are an excellent source of local, face-to-face support.
You may also be interested in our 'Parenting after brain injury' booklet, which is written for people in your situation. The booklet costs £3.50 through our shop, but the helpline can send you a free copy if you get in touch.
At the moment it's really important to get as much support as possible. The concerns you've described are very 'normal' after a brain injury, and I think Drusilla's excellent comments really sum this up. Between this forum, our local groups and our helpline I hope we can help you to move forward.
Please don't hesitate to post any more questions, or if you private message us (headwayuk) with your contact details we can ask the helpline to contact you or send any information mentioned above.
Best wishes,
Headway.
Hi Lisa, I had a B.H. 5 years ago and it's only these last few months i have started to come to terms with my new way of life. Your thoughts and worries won't go away, but like I've learnt to do push them to one side. It's harsh but what happened happened and you can't turn the clock back. What you can do is talk, especially to Headway who will be a massive practical and supportive help :). We have one life that takes some unexpected turns and we have no say in it. I will always worry about what's happened, but it does (eventually) get easier, it just takes time and great effort to change and adapt but you can do it. Get as much information as you can from the medical profession, ask as many questions as you need to, to help you understand, move forward and cope. Use this site to talk and get support. Ask whatever you need to ask, however good or bad because just writing can help and theres always someone to help.
A professional once said to me. Every time you feel down take a look at (or use a memory) that brings you peace, happiness and contentment. I look at a video on my phone of my grandson ( he's 22 months old) and on this particular day he's in the park with his daddy, it's the day after my weekly visit, where we played a sort of hide and seek. He's shouting Nanna,(that's me) because in his world he thinks I'm still hiding
None of what your going through is easy, but I hope I've helped in some small way. Be strong and if you think I can help in anyway please don't hesitate to ask. Take care
Hi Lisa, I too am in the first stages of coming to tersm with things...I had the Brain Haemoredge (SAH) and surgery only 4 months ago and I am learning now just to take 1 day at a time......and can relate to the depression....one day feel OK and next....in a minute can be sitting in floods of tears......I am determined to be positive......Think of all the wonderful things you have and focus on them....your children....your Dad you are staying with.........I also hope to get support here on the site...and it is good to have others who are experincing perhaps similar things. Goodness knows I know it is difficult not to worry........I have got myself in such a state about things...but now I realise that the worry itself will hinder my recovery so I focus on the things I CAN do and not the things I can't. Its early days Lisa.......one thing I am learning above everything else is patience........Take care x
hi lisa, i had a brain heamorrhage and coil surgery only 6 months ago and i fully understand how scared and depressed your feeling as i felt exactly the same and still do sometimes, what your doing right now is exactly the right thing talk talk talk ! my mum died as a result of a bh 25yrs ago but just look how far we have come since then i am on some very mild anti deppresants which i really did not want but they do help to take the edge off my mood swings from total elation to sobbing my eyes out .
after only 5 weeks i had found my local headway group (headway wirral) and it was the best thing i ever did i go tuesdays and thursdays every week now we all have some kind of brain injury or are carers of someone who has we chat do crafts have days out and there is always someone to help with benefits advice and other help and support .
i hope this has been of some help feel free to chat anytime im tracy sending you a massive hug and hoping you have a steady recovery , take care honey xx
Hi Lisa
My mum had an SAH 15 years ago, I remember how scary those first months after were for her and us.
My best bit of advice would be to make sure everyone around you understands what has happened to you and what the after effects might be and what a long and slow process recovery can be. We didn't have a clue and doctors were not exactly helpful. I wish we had read the Headway booklets back then. Get them and keep them around where everyone can read them!
If you can get to a Headway group i would highly recommend it.
totally agree with your advice.. None of my family or kids understood and still don't nor do they want to because to them they cannot see anything wrong coz i talk and now walk again so she must be ok. I think the consultant should get families together and make them sit thriugh a suport lesson so they realise the changes and support we need. I
I am 37 years old with 3 children and had a SAH 8 months ago. I was in hospital for three weeks, and had clipping surgery. I felt exactly the way you feel at the moment, scared and didn't know which way to turn. My GP was and still is a great support to me. I see him every 4-6 weeks not only for physical support but also emotional support which is crucial. I was told to set myself a small task each day something as simple as going to the shops, cleaning a room, etc, anything really to focus on. I still have bad days where I worry if this will ever happen again and if i get the slightest headache I start to panic but focusing on your children and the positive things in life heps. I remember feeling so angry with myself and sometimes I still do and with other people but I try and take a minute and gather my thoughts and this seems to work. 8 months on I have a very different outlook on life and now want to do all the things I ever wanted to do, I am a different person now, but my GP said you have to get to know the new you, the person who trips up on her words, has a terrible memory and dodgy arm, but hey am still here. I hope you continue to get better and wish you well.
vjones2 im sorry to read your family and friends just brush you off. I think its difficult for anybody who hasnt been through this to understand just how scary and what we go through.
Hello I had a brain hemorrage and aneurysm 7 weeks a go. I was living and working in Newcastle. I am at my parents in Nottingham. I suffer from my depression and seeing a doctor on Friday, I am a very positive person and I feel that is the way forward, my world has been made upside and down. I can help
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