Hi
Just had this diagnosed and I was referred in May to the neurosurgeon to review me. Having looked into the condition it states that the preferred treatment is to have a shunt put in but it also states the sooner the better practically!
If you have this condition how long was it before you were diagnosed & have you had a shunt put in.
My anxiety levels are rising as you can see it’s one more thing my brain is having to cope with beside a tumour & cvst !
Hi,
I had hydrocephalus, but it was traumatic due to my haemorrhage - I had an emergency EVD to relieve pressure and proposed lumbar punctures for emergencies! A shunt was an option but wasn’t eventually needed. There’s always the possibility that this might be needed in the future.
I’m aware that’s not terribly helpful in your situation but I have known people who have had a shunt fitted and have been fine with it so it’s not something I worry about as much as the other issues. What bothers me more is the hole in my skull from the original EVD.
I have to have another round of gammaknife surgery soon - they use this on tumors, etc too. Is this a option for you?
Hello, My husband actually developed hydrocephalus while he was still in hospital recovering from his brain injury. In rehabilitation, about 6 weeks after the initial injury. That day I noticed he was behaving strangely so I told the doctors, and thank goodness I did. They did a scan then fitted the shunt the following morning. They said if I hadn't alerted them it would have been disastrous, the doctor making movements with her hands to demonstrate basically that his brain would have burst, It was very scary. I would press to be seen ASAP.
Hi
I’ve just had a call with the secretary of my neuro surgeon who said they are very busy & the next appointment would be in March.
I can’t understand how this can be allowed. The neuro surgeon hasn’t even looked at the results of the lumbar puncture.
I have a brain tumour, I’ve got CVST and 10 other diagnosed conditions so I’m not being paranoid about my symptoms,
My local hospital referred me to Addenbrookes in Cambridge because they were not skilled enough to manage my MRI & CTV scan results which confirmed I have narrowing veins due to blood clots.
My anxiety is off the scale right now
I'm not surprised. All I can surmise is that there are different levels, so you just have to hope they know what they're doing, and that it really isn't urgent. I do hope this is the case.
Hi there. I have hydrocephalus related to the presence of an AVM. At 12 I started to get really bad headaches and vomiting. At 14 I finally had a CT scan and was admitted to hospital as an emergency. They said my ventricles were at bursting point.
hello Greggia, I was diagnosed with “normal pressure hydrocephalus” about 2 years ago. Unfortunately it was about 18 months from diagnosis to surgery. In my case while I was waiting, they had a “ tap” inserted in my head and once a fortnight, I attended the Outpatient dept at my local hospital to have the excess fluid drained off. It wasn’t as scary as it sounds. The “ tap” itself wasn’t noticeable under my hair. It solved the symptoms temporarily so if I were you I’d ask about it. The other thing I did was to find out the phone number of the dept who arranges the appointments. I then phoned them about every 3/4 weeks to ask if there was any progress on when my Op would take place. I was always polite but I believe that because I was a nuisance to them, I was at the forefront of their thoughts when a cancellation came up. In actual fact, I was only given 24 hours notice but I made sure I was packed and ready to go! The op itself was a success but you never quite go back to where you were before the hydrocephalus made itself known. I have problems with short term memory and my balance isn't great. Still, I’m glad I had the op.
Hydrocephalus...?
Hydrocephalus 
Friends does anyone of you have a shunt? 
Post 1: Jan.21, 2015 2:17AM
Ache in shunt.
